Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Looking for international carer research?
Visit the Carer Research and Knowledge Exchange Network (CAREN) to discover global carer- related research.
CAREN
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 32 results
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19.8.2023
The national disability insurance scheme and parenting support for families of children with developmental disability
Trevor G Mazzucchelli, Bruce J Tonge, Sharon Dawe, Avril V Brereton, Catherine Wade, Kirsten Baird-Bate
The article discusses the importance of providing parenting support for children with neurodevelopmental disabilities (including autism, intellectual disability and foetal alcohol spectrum disorder) under the Australian National Disability Insurance Scheme (NDIS).
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29.4.2023
Navigating community-based aged care services from the consumer perspective
Yuchen Xie, Myra Hamilton, Carmelle Peisah , Kaarin J Anstey , Craig Sinclair , UNSW Ageing Futures Institute; School of Psychology, University of New South Wales; Neuroscience Research Australia; Discipline of Psychiatry, University of New South Wales; Specialty of Psychiatry, University of Sydney.
This study investigated the experiences of older adults taking a more active role in navigating the aged care system.
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6.5.2021
Entering into a system of care
Rachel Quigley, Michele Foster, Desley Harvey, Carolyn Ehrlich
As Australia’s population ages, the need for informal care to assist older adults to remain living at home increases and now plays a crucial role in healthy ageing. However, existing systematic burdens create disparities in support received for carers and care recipients.
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10.11.2020
Rethinking respite in Australia
Lyn Phillipson, Keryn Johnson, Elaine Fielding, Elizabeth Cridland, Danika Hall, Christine Neville, Helen Hasan
This article explores ways in which uptake of respite services can be improved among carers of people with dementia and reveals that more active support is needed to address carer decline, as opposed to passive respite information, which is often insufficient.