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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

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Your search has returned 21 results

  • Specific groups of carers, Aboriginal and Torres Strait Islander carers

    29.12.2020

    Still me, still deadly

    Neuroscience Research Australia

    The 'Caring for Spirit' project aims to provide a centralised online source of culturally relevant and accessible information about dementia for Aboriginal and Torres Strait Islander communities.

    Dementia Younger onset dementia Aboriginal and Torres Strait Islander Video 5 minute read
    View
  • Recognition and inclusion, Carer recognition

    19.10.2014

    Our voices

    This series of five short videos provides insight into the lives of carers of family members with mental illness who are from refugee and migrant backgrounds.

    Refugees Lived experience Carer wellbeing Video 5 minute read
    View
  • Recognition and inclusion, Inclusion in decision making

    1.1.2018

    Tips for researchers involving unpaid carers in health and care research

    Learning for Involvement

    This resource provides information on improving carer involvement in research and sets out 'top tips' for improving carer involvement in research.

    Research Carer inclusion 5 minute read
    View
  • Caring and society, Social value of caring

    7.11.2022

    The real cost to unpaid carers

    Jennifer Ervin, Tania King

    This news article discusses global informal unpaid caregiving, estimated to equal around 9% of the global GDP, contributing substantially to economic and healthcare systems.

    Care sector Economic modelling 5 minute read Mental health carers
    View
  • Planning and transitions, Planning for emergencies

    9.8.2022

    People with disability and carers at more risk of homelessness, PTSD after floods

    Ivy Shih

    Inclusion of carers and people living with a disability in both flood preparedness and recovery efforts is urgently needed in Australia, with flood events compound existing physical and mental health issues.

    Flooding 5 minute read Carer wellbeing Mental health Qualitative study
    View
  • Specific groups of carers, Caring for a child who is sick or has a disability

    1.6.2023

    Peer support for parents of children with complex needs

    Cat Strawa, Gina-Maree Sartore

    This short article reveals the benefits of peer support for parents of children with complex needs.

    Children and young people Peer support 5 minute read
    View
  • Caring and society, Social value of caring

    1.3.2024

    Australia cares

    Sydney Policy Lab

    Launched in 2022 by Sydney Policy Lab, 'Australia Cares' is a project formed out of dialogues with public policy experts, care recipients and practitioners aiming to 'radically transform' Australia's systems, practices, and cultures of care.

    Policy Care relationship Social justice 5 minute read
    View
  • Caring and society, Social value of caring

    20.3.2024

    Community-led policymaking charts a path through care crises

    Sydney Policy Lab

    Drawing from the Sydney Policy Lab's project 'Australia Cares', this article highlights how the recognition of diverse expertise and lived experience in policymaking is one step in addressing the crises in our care system.

    Policy Carer inclusion Lived experience 5 minute read
    View
  • Carer health and wellbeing, Mental health

    22.5.2024

    Suicide among Centrelink income support recipients

    Life in Mind

    Workforce participation Income support Mental health 5 minute read Summary report
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.