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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Literature review
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Your search has returned 18 results

  • Income and paid work, Support at work

    6.3.2025

    Combining employment and care, and its health effects

    Charlotte Dötig, Reka Schweighoffer, Thomas Geisen Geisen, Karl Krajic , International Journal of care and caring

    This article explores the challenges faced by family carers in German-speaking countries balancing work and caring.

    International publication Carer support Carer wellbeing Mental health Work and care Qualitative data Literature review
    View
  • Specific groups of carers, Young carers

    13.8.2024

    The psychosocial outcomes of young carers in Australia

    Owen Walker, Richard Moulding

    This article is the first systematic literature review to consolidate the Australian research about young carers.

    Young carers Substance use Parents Literature review Scoping review
    View
  • Specific groups of carers, Young carers

    5.2.2021

    Intergenerational caring

    Barbara D’Amen, Marco Socci, Sara Santini

    The article explores the experiences of young people who care for older family members. It examines the types of tasks they take on, how caregiving affects their lives (both positively and negatively), and the ways they cope with these challenges.

    International publication Young carers Older people Carer wellbeing Carer support Systematic review Literature review
    View
  • Specific groups of carers, Caring for someone with dementia

    10.11.2021

    The experiences of those affected by parental young onset dementia

    Anna V Cartwright, Charlotte R Stoner, Richard D Pione, Aimee Spector , University College London (UCL), UK - Department of Clinical, Educational and Health Psychology

    This article explores the unique challenges faced by individuals whose parents are diagnosed with Young Onset Dementia (YOD). The review highlights the profound emotional, social, and practical impacts on these individuals, including feelings of loss, changes in family dynamics, and increased caregiving responsibilities.

    Carer support Support services Health care services Service design and delivery Cultural Responsiveness Qualitative study Systematic review Literature review
    View
  • Planning and transitions, Planning for emergencies

    24.4.2018

    Experiences of Individuals with Physical Disabilities in Natural Disasters

    This research article highlights the importance of recognising and accommodating to the specific needs of people with disabilities in natural disasters.

    Natural disasters Physical health Literature review Review
    View
  • Developing skills and knowledge, Online learning

    30.5.2025

    Type and efficacy of online training for informal carers:

    This narrative literature review was conducted to explore recent evidence of informal carer eLearning education and training programs, and to guide the design of an online training program for Australian carers, including those living in rural and geographically remote settings.

    Carer education Literature review Ageing Dementia Review
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.