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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Policy
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Your search has returned 47 results

  • Recognition and inclusion, Inclusion in decision making

    8.7.2024

    Setting priorities for mental health family carer research and advocacy in Australia

    Marianne Wyder,

    This article reports on the recent priority agenda for mental health family carer research and advocacy developed by a new Australia-based network of stakeholders and researchers with lived and living experience of supporting someone experiencing mental distress.

    Mental health carers Participatory research Policy Co-design Qualitative study
    View
  • Income and paid work, Financial hardship

    1.9.2024

    Impossible Choices

    Institute for Public Policy and Governance, NSW Council of Social Service

    Finances Financial wellbeing Income support Survey Focus group
    View
  • Service systems, Health care services

    11.9.2024

    Empowering carers when systems are complex

    Carers NSW, Carer Knowledge Exchange

    The CKE Interactive Webinar 8 focused on empowering carers in complex systems and improving service access. This paper summarises the themes discussed at the webinar by panellists and by participants in breakout rooms.

    Carer wellbeing Carer inclusion Mental health carers Policy
    View
  • Recognition and inclusion, Carer recognition

    11.9.2024

    Informing emerging carer policy

    Carers NSW, Carer Knowledge Exchange

    This paper outlines the key themes arising from an interactive consultation session held as
    part of the 2024 Research Incubator, ‘Sustainability and carers’.

    Carer rights Carer recognition Carer inclusion Consultation Report
    View
  • Caring and society, Social value of caring

    16.9.2024

    Producing the public caregiver

    Laura Megan Funk, Janna Klostermann, Holly Symonds-Brown, Katie Aubrecht, , International Journal of Care and Caring

    The article explores how Canadian organisations turn the care of family members into a political issue.

    Carer recognition Social policy Advocacy Feminist research Qualitative data
    View
  • ,

    19.8.2024

    Discussion paper: National Carer Strategy

    Australian Government Department of Social Services

    Strategy Policy Quantitative data Discussion paper
    View
  • Specific groups of carers,

    24.9.2024

    ‘Who looks after me?’

    Disability Policy Qualitative data
    View
  • Specific groups of carers, Culturally and linguistically diverse carers

    11.12.2024

    Reforming the Carer Visa

    , University of Sydney

    The carer visa has been routinely criticised for its restrictive eligibility criteria, complex application process and lengthy processing times. A two-prong solution is proposed to address outstanding visa issues and, second, to create a new temporary visa stream. 5 recommendations are provided.

    Migrants CALD Migration Policy Report
    View
  • Relationships and community, Social connection

    31.1.2025

    Unpaid Care Policies in the UK

    Heather Mulkey , International Journal of care and caring

    International publication Carer burden Social policy Book review
    View
  • Recognition and inclusion, Carer recognition

    2.1.2025

    Communique: Carer Knowledge Exchange Research Incubator, 28-30 May 2024

    Carer Knowledge Exchange

    The Carer Knowledge Exchange Research Incubator communique provides a summary of this three-day event that took place over six online sessions between 28 and 30 May 2024.

    Research Incubator Event Communique Policy Financial hardship Cultural Responsiveness
    View
  • Recognition and inclusion, Inclusion in decision making

    15.11.2024

    The Aussie Battlers: Life with a disability in regional, rural, and remote NSW

    Disability Advocacy Network NSW

    This article explores the challenges faced by people with disabilities in Australia and the importance of advocacy in addressing these issues.

    Disability Disability services Social policy Carer support Report
    View
  • Recognition and inclusion, Carer recognition

    1.2.2024

    At a Turning Point

    Marian Baird, Elizabeth Hill, Sydney Colussi

    At a Turning Point argues that a new social contract that puts gender equality, economic security and the well-being of carers and those they care for at the centre of policy design is essential to national productivity and prosperity.

    Carer-inclusive workplaces Flexible work Gender inequality Social policy Book
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.