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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Education
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Your search has returned 27 results

  • Specific groups of carers, Young carers

    29.10.2024

    One in six young Australians in carer role

    Australian National University

    This article reports on a survey by the Australian National University found that over 16% of young Australians aged 16-17 years old care for someone with a long-term condition, with young male carers making up more than half of this group.

    Carer education Capacity building Carer support
    View
  • Developing skills and knowledge, Caring skills

    24.12.2024

    Efficacy of Health Literacy Interventions for Caregivers of Individuals with Neurodevelopmental and Chronic Conditions

    Thom Nevill, Jessica Keeley, Susan Hunt, Rachel Skoss, Olivia Lindly, Jenny Downs, Amanda Marie Blackmore

    Carers of individuals with neurodevelopmental and chronic conditions play a vital role in managing health needs, but many struggle with limited health literacy.

    Carer burden Carer education Carer support Health care services Support and Training for carers
    View
  • Specific groups of carers, Caring for someone with dementia

    10.11.2021

    The experiences of those affected by parental young onset dementia

    Anna V Cartwright, Charlotte R Stoner, Richard D Pione, Aimee Spector , University College London (UCL), UK - Department of Clinical, Educational and Health Psychology

    This article explores the unique challenges faced by individuals whose parents are diagnosed with Young Onset Dementia (YOD). The review highlights the profound emotional, social, and practical impacts on these individuals, including feelings of loss, changes in family dynamics, and increased caregiving responsibilities.

    Carer support Support services Health care services Service design and delivery Cultural Responsiveness
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.