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Efficacy of Health Literacy Interventions for Caregivers of Individuals with Neurodevelopmental and Chronic Conditions

A Rapid Review

Published Date: 24.12.2024

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Theme: Developing skills and knowledge

Sub-theme: Caring skills

Carer burden Carer education Carer support Health care services Support and Training for carers Review

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Theme: Developing skills and knowledge

Sub-theme: Caring skills

View Publication Carer burden Carer education Carer support Health care services Support and Training for carers Review

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Efficacy of Health Literacy Interventions for Caregivers of Individuals with Neurodevelopmental and Chronic Conditions

A Rapid Review

Published Date: 24.12.2024

  • Author/ Authors

    Thom Nevill, Jessica Keeley, Susan Hunt, Rachel Skoss, Olivia Lindly, Jenny Downs, Amanda Marie Blackmore

  • Suggested citation (APA 7th edition)

    Nevill, T., Keeley, J., Hunt, S., Skoss, R., Lindly, O., Downs, J., & Blackmore, A. M. (2024). Efficacy of Health Literacy Interventions for Caregivers of Individuals with Neurodevelopmental and Chronic Conditions: A Rapid Review. Children, 12(1), 9. https://doi.org/10.3390/children12010009

Long Summary

Carers of individuals with neurodevelopmental and chronic conditions play a vital role in managing health needs, but many struggle with limited health literacy (HL), which can affect both their wellbeing and the health of those they care for. Since HL can be improved, interventions that provide tailored information, engage healthcare professionals, and use diverse formats may be most effective. This review examines how HL interventions impact caregivers' skills and the health outcomes of those they support, finding that these programs can enhance caregivers’ understanding and ability to manage health conditions, ultimately leading to better overall outcomes.

    Key Messages for Carers


  • Carers often face complex responsibilities, but with the right information and support, navigating healthcare systems can become more manageable, benefiting both caregivers and those they care for.
  • Care management can feel overwhelming, but engaging with healthcare professionals, community programs, or educational resources may provide useful strategies along the way.

  • Key Messages for Policy Makers


  • Tailored, well-designed health literacy programs, help caregivers navigate healthcare systems, leading to better support for both themselves and those they care for
  • By prioritising carer involvement in program development and ensuring interventions are accessible, engaging, and sustainable, policy makers can help build a more inclusive and supportive healthcare system that better meets the needs of caregivers and those they care for.

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.