Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 47 results
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28.6.2022
Tough times, hard choices
NSW Council of Social Service, Institute for Public Policy and Governance
This annual report investigates cost-of-living pressures for people living below the poverty line and low-income households in NSW. It includes findings from an online survey, focus groups and interviews with over 1,000 NSW residents, including carers.
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23.9.2022
Inequalities in caregiving strain during the COVID-19 pandemic
Alina Schmitz, Nekehia T. Quashie, Melanie Wagner, Judith Kaschowitz
This article explores the impact of the COVID-19 pandemic on informal carers, addressing inequalities in caregiving via a conceptual framework and review of the empirical evidence.
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19.8.2023
The National Disability Insurance Scheme and parenting support for families of children with developmental disability
Trevor G Mazzucchelli, Bruce J Tonge, Sharon Dawe, Avril V Brereton, Catherine Wade, Kirsten Baird-Bate
The article discusses the importance of providing parenting support for children with neurodevelopmental disabilities (including autism, intellectual disability and foetal alcohol spectrum disorder) under the Australian National Disability Insurance Scheme (NDIS).
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5.3.2024
Translating policy into practice by engaging older persons and their carers as co-researchers
Hannah Beks, Suzanne Clayden, Emma West, Olivia King, Laura Alston, Sue Williams, Alesha Sayner, Catherine Huggins, Kevin McNamara, Ellen Gaffy , Deeble Institute for Health Policy Research
This briefing calls for the greater involvement of older persons and their carers in participatory health research as 'co-researchers' to develop better solutions.
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20.3.2024
Community-led policymaking charts a path through care crises
Sydney Policy Lab
Drawing from the Sydney Policy Lab's project 'Australia Cares', this article highlights how the recognition of diverse expertise and lived experience in policymaking is one step in addressing the crises in our care system.
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1.10.2023
Why are siblings important to achieving disability policy goals in Australia?
This white paper outlines an evidence-based approach to understanding why siblings of people with disability should be considered a critical partner in achieving the priorities of Australia’s Disability Strategy 2021-2031.