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Bureaucracy and burden

An intersectionality-based policy analysis of social welfare policy with consequences for carers of people with life-limiting illness

Published Date: 1.4.2023

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Theme: Recognition and inclusion

Sub-theme: Carer recognition

Peer-reviewed journal article Social welfare Carer support

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Theme: Recognition and inclusion

Sub-theme: Carer recognition

View Publication Peer-reviewed journal article Social welfare Carer support

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Bureaucracy and burden

An intersectionality-based policy analysis of social welfare policy with consequences for carers of people with life-limiting illness

Published Date: 1.4.2023

  • Author/ Authors

    Kristin Bindley, Joanne M. Lewis, Michelle DiGiacomo, Joanne Travaglia

  • Suggested citation (APA 7th edition)

    Bindley, K., Lewis, J., Travaglia, J., & DiGiacomo, M. (2023). Bureaucracy and burden: An intersectionality-based policy analysis of social welfare policy with consequences for carers of people with life-limiting illness. Palliative Medicine, 37(4), 543–557. https://doi.org/10.1177/02692163221122289

Long Summary

This article analyses welfare policies including income support and housing for carers of someone with a life-limiting illness. The results of this study point out the current inequities in welfare policies and make a range of recommendations to improve Australian service systems.

Author's / Publisher's Contact Details:

https://orcid.org/ 0000-0003-1408-2484

    Key Messages for Carers


  • Reveals current inequalities in the welfare policies affecting carers
  • Demonstrates that current welfare policies assume that carers are able to navigate the complex systems put in place, placing the burden on carers to understand and navigate these systems

  • Key Messages for Policy Makers


  • Revealed that a range of assumptions about carers currently inform policy, i.e., that caring is temporary
  • Prescribes a range of recommendations to overcome the current inequalities in welfare policies affecting carers
  • Includes recommendations for policy makers, such as increased responsiveness to structurally vulnerable carers

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.