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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

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Your search has returned 95 results

  • Specific groups of carers, Culturally and linguistically diverse carers

    11.12.2024

    Reforming the Carer Visa

    , University of Sydney

    The carer visa has been routinely criticised for its restrictive eligibility criteria, complex application process and lengthy processing times. A two-prong solution is proposed to address outstanding visa issues and, second, to create a new temporary visa stream. 5 recommendations are provided.

    Migrants CALD Migration Policy Report
    View
  • Recognition and inclusion, Inclusion in decision making

    9.10.2024

    Integrating community and family aged care

    Nancy A. Pachana, Sunil Bhar, Kumchong Lee, Mary Ann Geronimo, Shuang Liu

    This study highlights the importance of integrating community and family care for older Australians from diverse cultural backgrounds.

    Family caregivers Community Care Holistic Health Cultural Responsiveness Report
    View
  • Income and paid work, Support at work

    1.1.2025

    The Carer’s Leave Act 2023: Six months on

    Carers UK

    The Carer’s Leave Act 2023, effective from April 2024, allows employees in England, Scotland, and Wales to take up to one week of unpaid leave annually to care for a relative or dependant with long-term care needs, starting from their first day of employment.

    Employment Carer support Economic modelling Survey Report
    View
  • Income and paid work, Financial hardship

    1.11.2024

    Lasting impacts: The economic costs of child poverty in New South Wales

    Brad Ruting, Nathan Blane, Sara Hutchinson Tovar, Angela Jackson, Andrew Craston , NSW Council of Social Service

    This report reveals that child poverty costs New South Wales $60 billion annually.

    Social welfare Children and young people Socioeconomic factors Report
    View
  • Service systems, Disability services

    1.12.2024

    Australian children with disabilities’ unmet support needs

    Martin O'Flaherty, Jessica Hill, Jennifer Smith-Merry ,

    This report highlights that 83% of children with disabilities in Australia have unmet support needs, with therapy, school-based support, and support workers being the most common.

    Children with disabilities Disability services Carer support Carer inclusion Report
    View
  • Specific groups of carers, Aboriginal and Torres Strait Islander carers

    6.2.2025

    Transforming Aged Care for Aboriginal and Torres Strait Islander people

    Department of Health and Aged Care (Australia)

    This report highlights the failure of the aged care system to meet the needs of Aboriginal and Torres Strait Islander people, calling for urgent reforms to ensure equity in access and outcomes.

    Aboriginal and Torres Strait Islander Carer inclusion Cultural Responsiveness Aged care Report
    View
  • Recognition and inclusion, Inclusion in decision making

    15.11.2024

    The Aussie Battlers: Life with a disability in regional, rural, and remote NSW

    Disability Advocacy Network NSW

    This article explores the challenges faced by people with disabilities in Australia and the importance of advocacy in addressing these issues.

    Disability Disability services Social policy Carer support Report
    View
  • Specific groups of carers, Caring for someone with autism

    2.4.2025

    National Autism Parent/Carer Survey 2025 Report

    Autism Awareness Australia , Autism Awareness Australia

    Survey Report Autism
    View
  • Caring and society, Carer statistics

    17.4.2025

    2024 National Carer Survey Summary Report

    Carers NSW

    This summary report provides an overview of national findings from the 2024 National Carer Survey regarding carers’ economic and social needs, caring relationships, carers’ experiences accessing services, and their health and wellbeing as well as diverse caring experiences.

    Aged care NDIS Mental health Carer recognition Carer needs Carer support Survey Summary report
    View
  • Service systems, Respite services

    30.4.2025

    Transportation: The Missing Link in Family Caregiver Support

    National Aging and Disability Transportation Center, ARCH National Respite Network and Resource Center, ARCH National Respite Network and Resource Center

    This resource provides information for caregiver support professionals about typical community transportation options and associated support services that could be used to support family caregivers in the US context.

    International publication Respite Support services Report
    View
  • Service systems, Carer support services

    27.5.2025

    Evaluating carer support interventions:

    Carer Knowledge Exchange

    This report consists of a summary of an international discussion panel hosted by the Carer Knowledge Exchange as part of the 2025 Research Incubator.

    Research Incubator Event Carer support Evaluation Report
    View
  • Specific groups of carers, Aboriginal and Torres Strait Islander carers

    20.6.2025

    Flourishing in later life:

    Chontel Gibson, Shirley Godwin, Kylie Radford, Donna Stanley

    Older Aboriginal and Torres Strait Islander people are key to the wellbeing of their families and communities. Many face complex challenges due to the ongoing impacts of colonisation and racism

    Capacity building Aboriginal and Torres Strait Islander Cultural Responsiveness Report
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.