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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

    FAQs
  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

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Your search has returned 32 results

  • Recognition and inclusion, Carer recognition

    11.9.2024

    Informing emerging carer policy

    Carers NSW, Carer Knowledge Exchange

    This paper outlines the key themes arising from an interactive consultation session held as
    part of the 2024 Research Incubator, ‘Sustainability and carers’.

    Carer rights Carer recognition Carer inclusion Consultation Report
    View
  • Specific groups of carers, Aboriginal and Torres Strait Islander carers

    16.10.2024

    2024 National Carer Survey Factsheet: First Nations Carers

    Carers NSW , Carers NSW

    The Carers NSW 2024 National Carer Survey was conducted from 1 June to 31 July 2024 and received 10,096 valid responses of carers from all across Australia.

    Carer support Survey Carer recognition Carer wellbeing Aboriginal and Torres Strait Islander
    View
  • Recognition and inclusion, Inclusion in decision making

    28.3.2025

    Insights for good practice

    Carers NSW

    This document summarises the key themes arising from the Carer Knowledge Exchange (CKE) interactive webinar, ‘Connecting carer research to practice through collaboration’, which took place on Thursday 28 November 2024.

    Lived experience Carer inclusion Participatory research
    View
  • Caring and society, Carer statistics

    17.4.2025

    2024 National Carer Survey Summary Report

    Carers NSW

    This summary report provides an overview of national findings from the 2024 National Carer Survey regarding carers’ economic and social needs, caring relationships, carers’ experiences accessing services, and their health and wellbeing as well as diverse caring experiences.

    Aged care NDIS Mental health Carer recognition Carer needs Carer support Survey Summary report
    View
  • Specific groups of carers, Gender and sexuality diverse carers

    15.6.2025

    2024 National Carer Survey LGBTQ+ Carers Fact Sheet

    Carers NSW , Carers NSW

    LGBTQ+ Diversity Carer support Carer recognition Survey
    View
  • Specific groups of carers, Aboriginal and Torres Strait Islander carers

    12.9.2025

    Empowering First Nations carer voices

    Carer Knowledge Exchange , Carers NSW

    This report explore insights from two Carer Knowledge Exchange (CKE) events held in 2025: the webinar 'Empowering First Nations carer voices: Transforming policy and practice (26 February 2025), and the annual Research Incubator Event: 'Supporting First Nations carers' (28 May 2025).

    First Nations carers Carer inclusion Support services Cultural Responsiveness Report
    View
  • Service systems, Carer support services

    23.9.2025

    Research Incubator Event 2025:

    Carers NSW

    The Research Incubator 2025: Connecting research to practice to improve outcomes for carers, held from 26–28 May 2025, brought together 100 researchers, policymakers, carers, and practitioners.

    Research Incubator Event Carer education Carer inclusion Carer needs Carer recognition
    View
  • Specific groups of carers, Aboriginal and Torres Strait Islander carers

    15.10.2025

    First Nations Carers in the National Carer Survey

    Carers NSW

    First Nations carers Report Survey
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.