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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Carer rights
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Your search has returned 8 results

  • Recognition and inclusion, Carer recognition

    11.7.2019

    Claiming rights

    Kathryn Knight, Laura Davy

    This article explores the importance of meaningful recognition and inclusion of carers in their own right.

    Carer rights Carer support Financial wellbeing Disability Peer-reviewed journal article Open access Discussion paper
    View
  • Recognition and inclusion, Carer recognition

    4.8.2015

    The carer persona

    Timothy Broady

    This article discusses the difficulties that arise surrounding the 'carer persona' identity which focuses primarily on the needs of their care recipients and often neglects the carers own needs.

    Carer identity Carer needs Carer intervention Carer rights
    View
  • Recognition and inclusion, Carer recognition

    1.8.2017

    A just reward?

    Carers NSW

    This resource highlights the many disparities between paid and unpaid care.

    Carer burden Carer recognition Superannuation Respite Carer rights Review
    View
  • Service systems, Disability services

    1.9.2023

    "I look at their rights first"

    Erin Leif, Pearl Subban, Umesh Sharma, Russell Fox

    This study looks at the specific strategies that Australian behaviour support practitioners employ in their practice to protect and upholding the rights of the people they work with.

    Disability Disability services Carer rights Survey Qualitative data
    View
  • Recognition and inclusion, Carer recognition

    11.9.2024

    Informing emerging carer policy

    Carers NSW, Carer Knowledge Exchange

    This paper outlines the key themes arising from an interactive consultation session held as
    part of the 2024 Research Incubator, ‘Sustainability and carers’.

    Carer rights Carer recognition Carer inclusion Consultation Report
    View
  • Specific groups of carers, Culturally and linguistically diverse carers

    28.5.2024

    Patient Caregiver Perspectives on Accessing Language Interpretation in a Pediatric Emergency Department

    Emily A. Hartford, Nicholas Dimenstein, Barry Dwight , K. Casey Lion

    This article highlights the challenges faced by patients and caregivers who speak a language other than English (LOE) in pediatric emergency departments (ED).

    Carer rights Decision-making Health care CALD Cross-sectional study Survey
    View
  • Specific groups of carers, Young carers

    2.10.2024

    The challenge of identifying young carers in the US: how state laws put families at risk for separation

    Andrea Faith Kalvesmaki, Katherine E.M. Miller, Emma Armstrong-Carter, Feylyn Lewis, Regina A. Shih, Elizabeth Olson, Melinda S. Kavanaugh , International Journal of care and caring

    The article discusses the difficulties in identifying young carers in the US and how state laws can inadvertently put families at risk of separation.

    Young carers International publication USA Carer rights Qualitative data
    View
  • Recognition and inclusion, Inclusion in decision making

    13.1.2026

    Epistemic injustice

    Kylie Brown , Taylor & Francis online

    This article highlights the issue of epistemic injustice, where the knowledge and experiences of family carers and the lived experience workforce are often dismissed or undervalued due to power imbalances within societal and institutional systems.

    International publication UK Carer recognition Carer inclusion Carer rights Qualitative descriptive study
    View

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.