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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Children with disabilities
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Your search has returned 13 results

  • Income and paid work, Support at work

    22.12.2016

    The experience of sole mothers balancing paid work with care for a child with a disability

    Lindsay Cole, Angela Crettenden, Rachel Roberts, Annemarie Wright

    This article explores the experiences of sole mothers who care for a child with a disability with a particular focus on how this role impacts their ability to participate in paid work.

    Workforce participation Employment Children with disabilities Single parent families Peer-reviewed journal article Qualitative study
    View
  • Specific groups of carers, Caring for a child who is sick or has a disability

    29.11.2017

    Experiences and needs of carers of Aboriginal children with a disability

    Michelle DiGiacomo, Anna Green, Patricia Delaney, John Delaney, Patrick Patradoon-Ho, Penelope Abbott, Patricia M. Davidson

    This article examines the double disadvantage that Aboriginal and Torres Strait Islander people with a disability experience, as well as the needs of their family members and carers.

    Aboriginal and Torres Strait Islander Support services Children with disabilities Open access Peer-reviewed journal article Thematic analysis Qualitative study
    View
  • Specific groups of carers, Caring for a child who is sick or has a disability

    19.8.2013

    ‘Doing the hard yards’

    Michelle DiGiacomo, Patricia Delaney, Penelope Abbott, Patricia M. Davidson, Joanne Delaney, Frank Vincent

    This article analyses the experiences of carers of Aboriginal children accessing disability services.

    Disability services Aboriginal and Torres Strait Islander Children with disabilities Peer-reviewed journal article Open access Focus group
    View
  • Specific groups of carers, Caring for a child who is sick or has a disability

    1.12.2016

    Navigating the journey of Aboriginal childhood disability

    Anna Green, Penelope Abbott, Patricia Delaney, Patrick Patradoon-Ho, John Delaney, Michelle DiGiacomo, Patricia M. Davidson

    This study investigated the journey that carers of Aboriginal children with a disability go through when accessing services and support.

    Aboriginal and Torres Strait Islander Children with disabilities Support services Peer-reviewed journal article Open access Qualitative data
    View
  • Specific groups of carers, Caring for a child who is sick or has a disability

    17.4.2020

    ‘It’s quite a complex trail for families now’

    Anna Green, Penelope Abbott, Tim Luckett, John Delaney, Patricia Delaney, Hasantha Gunasekera, Michelle DiGiacomo, Patricia M. Davidson

    This article explores the many barriers to accessing services that families of Aboriginal and Torres Strait Islander children with a disability experience.

    Aboriginal and Torres Strait Islander Children with disabilities Support services Peer-reviewed journal article Open access Qualitative study
    View
  • Specific groups of carers, Caring for a child who is sick or has a disability

    10.12.2019

    Collaborating across sectors to provide early intervention for Aboriginal and Torres Strait Islander children with disability and their families

    Anna Green, Penelope Abbott, Tim Luckett, John Delaney, Patricia Delaney, Hasantha Gunasekera, Michelle DiGiacomo, Patricia M. Davidson

    This study explores service providers perception of some of the factors that cause lack of coordination across services for families of Aboriginal children with disability.

    Aboriginal and Torres Strait Islander Children with disabilities Support services Open access Peer-reviewed journal article Qualitative study
    View
  • Specific groups of carers, Caring for a child who is sick or has a disability

    1.1.2021

    Being more than a mother

    So Sin Sim, Helen Bourke-Taylor, Ellie Fossey, Mong-lin Yu

    This study explored the experiences of Asian immigrant mothers in Australia who have a child with a disability.

    CALD Children with disabilities Peer-reviewed journal article Gender Qualitative study
    View
  • Specific groups of carers, Caring for a child who is sick or has a disability

    Parent perspectives on School Can't: implications for health, welfare, disability and education

    Louise Rogers, Tiffany Westphal

    This report details the findings of a survey (conducted in December 2022 of 441 parents/carers who were supporting students who were experiencing school attendance difficulties.

    Children with disabilities Education Lived experience Survey Report
    View
  • Relationships and community, Peer support groups and networks

    2.12.2023

    A new playground

    eSafety Commissioner

    This report indicates that the internet forms a 'virtual playground' for many children and young people with disabilities as they feel a greater level of self-confidence in the digital world than offline.

    Digital literacy Disability Children with disabilities Digital access Survey Report
    View
  • Developing skills and knowledge, Online learning

    1.5.2024

    Behaviours of children with disability

    Cat Strawa, Cat Lancaster, Anagha Joshi, Mandy Truong, Jasmine MacDonald, Kylie Butler

    This online evidence package about behaviours of children with disability provides resources to parents, carers, policymakers, service providers and educators.

    Parents Children with disabilities Carer support Information
    View
  • Service systems, Disability services

    1.12.2024

    Australian children with disabilities’ unmet support needs

    Martin O'Flaherty, Jessica Hill, Jennifer Smith-Merry ,

    This report highlights that 83% of children with disabilities in Australia have unmet support needs, with therapy, school-based support, and support workers being the most common.

    Children with disabilities Disability services Carer support Carer inclusion Report
    View
  • Developing skills and knowledge, Self-advocacy

    1.1.2025

    What I Wish I Had Known:

    Thom Nevill, Jessica Keeley, Rachel Skoss, Rachel Collins, Katherine Langdon, Jaquie Mills, Jenny Downs

    This study explores the experiences of parents managing the health of children with intellectual disabilities, who often face ongoing health challenges.

    Carer support Children with disabilities Support and Training Policy Health care services Qualitative study Thematic analysis
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.