Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 15 results
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1.1.2023
Sociocultural factors associated with detection of autism among culturally and linguistically diverse communities in Australia
Aniqa Hussain
This study aimed to determine the sociocultural factors that are associated with the age and type of first concern reported by parents of autistic children among CALD communities in Australia.
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20.5.2024
Navigating multiple and complex systems of care and support with ageing family carers from multicultural backgrounds in Australia
Nichole Georgeou
This paper highlights the challenges faced by culturally and racially marginalised families face when seeking access to disability and aged care services and support.
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8.1.2025
Experiences of Caregiving and Service use Among Ethnic Migrant Older Adults and Their Caregivers in Western Countries
Anthony Obinna Iwuagwu, Abner Weng Cheong Poon, Elizabeth Fernandez
This article looks at the experiences of older people from ethnic minority backgrounds (aged 60 and over) and their caregivers in Western countries.
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6.2.2025
Transforming Aged Care for Aboriginal and Torres Strait Islander people
Department of Health and Aged Care (Australia)
This report highlights the failure of the aged care system to meet the needs of Aboriginal and Torres Strait Islander people, calling for urgent reforms to ensure equity in access and outcomes.
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24.2.2025
Middle-Aged Adults' Perspectives on Caregiving for Their Siblings With Intellectual and Developmental Disabilities
Se Kwang Hwang, Kyung Mee Kim, Chung Eun Lee
This study looks at how middle-aged siblings in South Korea take on the role of caring for a brother or sister with intellectual or intellectual disabilities.
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10.11.2021
The experiences of those affected by parental young onset dementia
Anna V Cartwright, Charlotte R Stoner, Richard D Pione, Aimee Spector , University College London (UCL), UK - Department of Clinical, Educational and Health Psychology
This article explores the unique challenges faced by individuals whose parents are diagnosed with Young Onset Dementia (YOD). The review highlights the profound emotional, social, and practical impacts on these individuals, including feelings of loss, changes in family dynamics, and increased caregiving responsibilities.