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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Financial hardship
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Your search has returned 7 results

  • Service systems, Service changes

    22.12.2016

    The impact of caring on informal carers' employment, income and earnings

    Michael Bittman, Trish Hill, Cathy Thomson

    Noting the gradual shift from institutionalised forms of health and aged care into the home and community, this paper examines the effect on family and friend carers who are required to balance employment with emerging care responsibilities.

    Financial hardship Employment Financial wellbeing Peer-reviewed journal article Longitudinal Quantitative data
    View
  • Income and paid work, Financial hardship

    3.11.2019

    Financial stress experienced by informal carers of adults with a chronic disease

    Michelle DiGiacomo, Sungwon Chang, Tim Luckett, Meera Agar, Jane Phillips, Lawrence Lam

    This article analyses some of the characteristics that corresponded with carers experiencing financial stress.

    Financial hardship Financial stress Financial wellbeing Peer-reviewed journal article Cross-sectional study Survey
    View
  • Income and paid work, Financial hardship

    28.6.2022

    Tough times, hard choices

    NSW Council of Social Service, Institute for Public Policy and Governance

    This annual report investigates cost-of-living pressures for people living below the poverty line and low-income households in NSW. It includes findings from an online survey, focus groups and interviews with over 1,000 NSW residents, including carers.

    Financial hardship Financial stress Financial wellbeing 2 minute read
    View
  • Recognition and inclusion, Carer recognition

    2.1.2025

    Communique: Carer Knowledge Exchange Research Incubator, 28-30 May 2024

    Carer Knowledge Exchange

    The Carer Knowledge Exchange Research Incubator communique provides a summary of this three-day event that took place over six online sessions between 28 and 30 May 2024.

    Research Incubator Event Communique Policy Financial hardship Cultural Responsiveness
    View
  • Specific groups of carers, Caring for someone with disability

    16.6.2025

    The Costs of Living With Disability in Australia

    Sophie Yates ,

    This article outlines the evidence gaps on poverty and disability in Australia, and explores some of the different methods used to understand the relevant issues both in Australia and internationally.

    Social policy Disability services Research Financial hardship Carer recognition Quantitative data
    View
  • Caring and society, Economic value of caring

    24.2.2025

    Understanding the characteristics of unpaid carers living in financial hardship:

    Javiera Cartagena-Farias, Nicola Brimblecombe

    This study explores the real-life financial and emotional pressures faced by carers, highlighting how these challenges can increase their vulnerability to poverty, insecure employment, and social hardship.

    Financial hardship Carer needs Carer support United Kingdom Quantitative data Longitudinal
    View
  • Caring and society, Economic value of caring

    1.9.2024

    Poverty and financial hardship of unpaid carers in Scotland

    Julia Wyjadlowska, Matthew Tibbles,, Matthew Beebee, Matthew Oakley

    This report explores the extent and drivers of unpaid carer poverty in Scotland. It highlights that around 100,000 unpaid carers in Scotland live in poverty, with poverty rates 56% higher and deep poverty rates 60% higher than for non-carers.

    International publication UK Financial hardship Carer needs Economic value Report
    View

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.