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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Home care
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Your search has returned 6 results

  • Specific groups of carers, Caring for someone with dementia

    1.10.2018

    Interventions to support carers of people with dementia

    Steering Committee for the Review of Government Service Provision

    This review considers what works to support those caring for people with Dementia and explores the effectiveness of different intervention techniques to prolong a carer's capacity to maintain care.

    Dementia Carer wellbeing Carer recognition Home care Review Qualitative study
    View
  • Carer health and wellbeing, Mental health

    10.7.2009

    The subjective well-being of people caring for a family member with a severe disability at home

    Robert Cummins

    This journal article provides insight into the wellbeing of those caring for a relative with a severe disability.

    Home care Disability Wellbeing Peer-reviewed journal article Qualitative data Quantitative data Review
    View
  • Service systems, Carer support services

    16.9.2024

    Becoming an inadvertent home care user: The transition for cohabitating partners

    Håkan Jönson, Tove Harnett

    This study explores how the lives of cohabiting partners are affected by home care services and the strategies they use to cope with the presence of care workers in their homes.

    Carer burden Carer support caregiver adaptation International publication Qualitative data
    View
  • Specific groups of carers, Caring for someone with dementia

    13.2.2025

    Caring for people with dementia

    Ruth Brookman, Ruby Lipson-Smith, Olivia Maurice, Nina Mcllwain, Lukas Hofstaetter, Michelle DiGiacomo, Danielle Ni Chróinín, Madeleine J Cannings, Celia B Harris

    This study explores the experiences of family care partners of people with dementia, highlighting their unmet needs and barriers to support within healthcare and aged care systems.

    Dementia Home care Support services Longitudinal Qualitative study
    View
  • Carer health and wellbeing, Physical health

    11.10.2025

    Informal Caregivers in Transitional Hospital-to Home Care for Older People:

    Filipa Pereira , Catherine Bolduc, Pauline Melly, Virginie Renggli

    The article highlights the critical role of informal caregivers (ICs) in hospital-to-home transitions for older adults, emphasizing their contributions to patient safety, emotional support and continuity of care.

    Caregivers Older people Discussion paper
    View
  • Caring and society, Carer statistics

    2.1.2026

    Characterising Informal Care in Older Individuals Receiving Long-Term Home Care Support

    Tesfahun C. Eshetie, Alana R. Cuthbert, Janet K. Sluggett, Solomon Yu, Carolyn Dawkins, Marjorie Schulze , Australasian Journal on Ageing

    This national epidemiological study investigates how many older Australians receiving long‑term home care have an informal carer, how this has changed over time, and how availability varies across different parts of the country.

    Older people Carer inclusion Informal carers Quantitative data Cross-sectional study
    View

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.