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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

    FAQs
  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Summary report
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Your search has returned 11 results

  • Caring and society, Carer statistics

    1.10.2018

    Carers NSW 2018 carer survey summary report

    Carers NSW

    The Carers NSW 2018 survey collected data about carers’ lived experience to inform employers, service provides, government, and the broader community about the ongoing needs of carers.

    Carer support Carer recognition Employment Survey Report
    View
  • Caring and society, Carer statistics

    11.10.2020

    2020 National Carer Survey

    Carers NSW

    This summary report outlines key findings from the 2020 National Carer Survey, conducted by Carers NSW with the support of the State and Territory Carer Organisations.

    Carer support Financial stress Employment Wellbeing Health Health care services Disability services Mental health services Aged care Carer recognition Survey Summary report
    View
  • Specific groups of carers, Young carers

    1.6.2020

    Young carers research project

    Carers NSW

    This research project aimed to establish evidence regarding how to better support the needs and experiences of young carers.

    Young carers Research Hidden carers Summary report Focus group Qualitative data
    View
  • Caring and society, Caring during the COVID-19 pandemic

    1.3.2022

    Overview of findings from the Victorian COVID-19 carer survey

    Carers Victoria Knowledge Centre

    Victorian COVID-19 carer survey data shows that carers have suffered serious consequences during the pandemic including poor mental health and wellbeing, social isolation, and loss of respite from their caring role.

    Carer wellbeing Pandemic COVID-19 10 minute read Summary report
    View
  • Caring and society, Caring during the COVID-19 pandemic

    1.5.2023

    The bereavement during COVID-19 study

    Elizabeth A. Lobb, Fiona Maccallum, Serra Ivynian

    This study examined the severe impact of Australia's strict COVID-19 public health measures on end-of-life care and bereavement practices. These measures, designed to reduce infection rates, led to isolation and disrupted support for families and friends of the deceased.

    COVID-19 Bereavement Summary report Qualitative study
    View
  • Service systems, Disability services

    7.12.2023

    Working together to deliver the NDIS

    Independent Review of the National Disability Insurance Scheme

    This final report of the independent review of the National Disability Insurance Scheme (NDIS) includes 26 recommendations with 139 actions to change the system that supports people with disability.

    Disability NDIS Disability services Review Summary report
    View
  • Income and paid work, Support at work

    23.11.2023

    Supporting carers at UNSW Sydney

    Lizzie Muller

    This report shares the results of research conducted during a coaching program for staff with caring responsibilities.

    Carer support Carer-inclusive workplaces Flexible work Summary report
    View
  • Carer health and wellbeing, Mental health

    22.5.2024

    Suicide among Centrelink income support recipients

    Life in Mind

    Workforce participation Income support Mental health 5 minute read Summary report
    View
  • Caring and society, Carer statistics

    4.7.2024

    Disability, Ageing and Carers, Australia

    Australian Bureau of Statistics

    Quantitative data Survey Carers Summary report
    View
  • Caring and society, Carer statistics

    17.4.2025

    2024 National Carer Survey Summary Report

    Carers NSW

    This summary report provides an overview of national findings from the 2024 National Carer Survey regarding carers’ economic and social needs, caring relationships, carers’ experiences accessing services, and their health and wellbeing as well as diverse caring experiences.

    Aged care NDIS Mental health Carer recognition Carer needs Carer support Survey Summary report
    View
  • Carer health and wellbeing, Mental health

    1.3.2017

    The economic value of informal mental health caring in Australia:

    Sandra Diminic, Emily Hielscher, Yong Yi Lee, Meredith Harris, Jaclyn Schess, Jan Kealton, Harvey Whiteford

    The report, commissioned by Mind Australia and authored by the University of Queensland, estimates the economic value of informal mental health caring in Australia.

    Mental health carers Economic value Summary report
    View

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.