Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 49 results
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11.7.2019
Understanding rural caregivers’ experiences of cancer care when accessing metropolitan cancer services
Anna Ugalde, Sarah-May Blaschke, Anna Boltong, Penelope Schofield, Sanchia Aranda, Jo Phipps-Nelson, Suzanne K. Chambers, Meinir Krishnasamy, Patricia M. Livingston
This study explored the experiences of carers of people with cancer who reside in rural Australia. Specifically, this study explored this cohort's experience in accessing metropolitan cancer health services.
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1.7.2022
Building a new life
Wendy Duggleby, Hannah M. O'Rourke, Pamela Baxter, Cheryl Nekolaichuk, Genevieve Thompson, Shelley Peacock, Sunita Ghosh, Jayna Holroyd-Leduc, Carrie McAiney, Véronique Dubé, Jennifer Swindle, Madeleine Pagnucco-Renaud, Samina Sana
This paper explored how family carers of people living with dementia that now reside in long term care deal with significant changes, and provides background on how to best support these carers
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27.2.2014
The recovery framework as a way of understanding families' responses to mental illness
Robert Bland
Personal recovery is a mental health principle which suggests that individuals own and are responsible for their own recovery. In this framework, the role of the family is more in recovery-oriented support.
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28.5.2024
Strategies adopted by informal carers to enhance participation in daily activities for persons with dementia
Gemma Burridge, Rosalind Bye, Carmen Amato, David Basic, Danielle Ni Chróinín, Susanna Hill, Kaitlin Howe, Karen P.Y.Liu
This qualitative study aimed to explore the strategies carers use to assist individuals with dementia in completing daily activities.
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12.9.2024
Development and Psychometric Evaluation of the Self-Care of Informal Caregivers Inventory
International Journal of Nursing Studies Advances
This study aimed to develop and validate a theory-based instrument, the Self-Care of Informal Caregivers Inventory, to measure self-care behaviors in three dimensions: maintenance, monitoring, and management.