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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Family caregivers
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Your search has returned 32 results

  • Specific groups of carers, Caring for someone at the end of life

    28.10.2020

    Caring precariously

    Kristin Bindley, Joanne M. Lewis, Joanne Travaglia, Michelle DiGiacomo

    This article explores the experiences of carers who are navigating end-of-life care.

    Palliative care Social welfare Socioeconomic factors Qualitative data Family caregivers Open access Peer-reviewed journal article Qualitative descriptive study
    View
  • Carer health and wellbeing, Mental health

    28.3.2022

    Caregiver burden and the associated factors in the family caregivers of patients with schizophrenia

    Leila Gholizadeh , Farnaz Rahmani, Fariborz Roshanghar, Elnaz Asghari

    This article analyses the experiences of families who care for a person with schizophrenia.

    Carer burden Carer wellbeing Family caregivers Peer-reviewed journal article Quantitative data
    View
  • Recognition and inclusion, Carer recognition

    25.5.2011

    Role recognition and changes to self-identity in family caregivers of people with advanced cancer

    Anna Ugalde, Meinir Krishnasamy, Penelope Schofield

    This study reveals how carers of people with advanced cancer view the impact of caregiving and their role as a caregiver.

    Carer recognition Carer identity Cancer Peer-reviewed journal article Qualitative data
    View
  • Specific groups of carers, Caring for someone with a chronic health condition

    6.2.2023

    Supportive care for carers of people with high-grade glioma

    Diana Jones

    This study aimed to explore the impact of supportive interventions for carers of individuals with high-grade glioma.

    Carer burden High-grade glioma 2 minute read Family caregivers
    View
  • Planning and transitions, Changes in the caring role

    1.7.2022

    Building a new life

    Wendy Duggleby, Hannah M. O'Rourke, Pamela Baxter, Cheryl Nekolaichuk, Genevieve Thompson, Shelley Peacock, Sunita Ghosh, Jayna Holroyd-Leduc, Carrie McAiney, Véronique Dubé, Jennifer Swindle, Madeleine Pagnucco-Renaud, Samina Sana

    This paper explored how family carers of people living with dementia that now reside in long term care deal with significant changes, and provides background on how to best support these carers

    Dementia Long-term carers Family caregivers Qualitative study
    View
  • Recognition and inclusion, Carer recognition

    1.7.2023

    Invisible no more

    Miles Sibley, Laila Hallam, Sue Robins

    This article discusses the radical shift that COVID-19 brought to healthcare policies and practice, including the abandonment of families as partners in care.

    Informal carers Family caregivers Carer recognition Review
    View
  • Service systems, Carer support services

    10.4.2023

    Digital health interventions to support family caregivers

    Shumenghui Zhai, Frances Chu, Minghui Tan, Teresa Ward, Weichao Yuwen

    Digital access Carer intervention Family caregivers Carer support Systematic review
    View
  • Service systems, Mental health services

    29.8.2023

    Mental health family carer experiences of COVID-19 in Australia

    , National Mental Health Consumer & Carer Forum

    This co-designed research project that looked at how the COVID-19 pandemic affected the experiences and wellbeing of carers who support people with mental health challenges.

    Mental health services Mental health carers Mental health COVID-19 Family caregivers Co-design Report Qualitative study
    View
  • Specific groups of carers, Caring for someone living with a mental illness

    27.2.2014

    The recovery framework as a way of understanding families' responses to mental illness

    Robert Bland

    Personal recovery is a mental health principle which suggests that individuals own and are responsible for their own recovery. In this framework, the role of the family is more in recovery-oriented support.

    Family caregivers Treatment burden Mental health Qualitative study
    View
  • Developing skills and knowledge, Self-advocacy

    28.5.2024

    Strategies adopted by informal carers to enhance participation in daily activities for persons with dementia

    Gemma Burridge, Rosalind Bye, Carmen Amato, David Basic, Danielle Ni Chróinín, Susanna Hill, Kaitlin Howe, Karen P.Y.Liu

    This qualitative study aimed to explore the strategies carers use to assist individuals with dementia in completing daily activities.

    Mental health carers Carer stress Family caregivers Education Qualitative data
    View
  • Carer health and wellbeing, Mental health

    22.5.2024

    Can cessation of caregiving for parents relieve family caregivers’ psychological distress?

    Takashi Oshio, Ruru Ping

    This article examines the mental health effects of caregiving cessation among family caregivers in Japan, using data from a 17-wave national survey of 8,280 individuals aged 50–59.

    Carer support Carer needs Mental health Carer wellbeing Japan Longitudinal
    View
  • Recognition and inclusion, Inclusion in decision making

    9.10.2024

    Integrating community and family aged care

    Nancy A. Pachana, Sunil Bhar, Kumchong Lee, Mary Ann Geronimo, Shuang Liu

    This study highlights the importance of integrating community and family care for older Australians from diverse cultural backgrounds.

    Family caregivers Community Care Holistic Health Cultural Responsiveness Report
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.