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Caring precariously

An interpretive description of palliative care and welfare worker perspectives on end-of-life carers navigating social welfare

Published Date: 28.10.2020

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Theme: Specific groups of carers

Sub-theme: Caring for someone at the end of life

Palliative care Social welfare Socioeconomic factors Qualitative data Family caregivers Open access Peer-reviewed journal article

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Theme: Specific groups of carers

Sub-theme: Caring for someone at the end of life

View Publication Palliative care Social welfare Socioeconomic factors Qualitative data Family caregivers Open access Peer-reviewed journal article

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Caring precariously

An interpretive description of palliative care and welfare worker perspectives on end-of-life carers navigating social welfare

Published Date: 28.10.2020

  • Author/ Authors

    Kristin Bindley, Joanne M. Lewis, Joanne Travaglia, Michelle DiGiacomo

  • Suggested citation (APA 7th edition)

    Bindley, K., Lewis, J., Travaglia, J., & DiGiacomo, M. (2021). Caring precariously: An interpretive description of palliative care and welfare worker perspectives on end of life carers navigating social welfare. Palliative Medicine, 35(1), 169–178. https://doi.org/10.1177/0269216320966492

Long Summary

This article explores the experiences of carers navigating end-of-life care. This qualitative study looks at the way that people who receive government support in low socioeconomic areas are currently (2021) being supported by carer services and identifies the need for a greater connection between welfare services and palliative care.

Author's / Publisher's Contact Details:

https://orcid.org/ 0000-0003-1408-2484

    Key Messages for Carers


  • Discusses the financial aspects of being an end-of-life carer
  • Provides an overview of the current (2021) welfare services available to end-of-life carers
  • Makes use of the participation of carers and welfare workers to direct research

  • Key Messages for Policy Makers


  • Provides an overview of the current approach to welfare services for end-of-life carers
  • Provides evidence-based recommendations for improving services in this area
  • Provides an overview of carer attitudes towards current targeted policies

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.