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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Quantitative data
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Your search has returned 76 results

  • Carer health and wellbeing, Mental health

    7.4.2024

    Impact of informal caregiving on depressive symptoms among a national cohort of men

    Tania L. King, Yamna Taouk, Peter P. Vitaliano, Humaira Maheen

    This article examines at the negative effects that caregiving can have on the mental health of male caregivers.

    Carer recognition Mental health Gender Longitudinal Quantitative data
    View
  • Caring and society, Carer statistics

    14.5.2024

    Australian carer data sources

    Carer Knowledge Exchange

    Quantitative data Carer wellbeing Support services Guide
    View
  • Service systems, Disability services

    1.4.2024

    Informing strategies to prevent abuse, neglect, and exploitation of adults with disability and older people by carers

    Timothy Broady, Ilan Katz, Sarah Judd-Lam, Catherine Thomson

    This report discusses alleged abuse, neglect, and exploitation of adults with disability and older people by carers.

    Elder abuse Disability Older people Quantitative data Qualitative data Thematic analysis
    View
  • Specific groups of carers, Aboriginal and Torres Strait Islander carers

    1.7.2021

    The wellbeing of carers of older Aboriginal people living in the Kimberley region of remote Western Australia

    Christopher Etherton-Beer, Dina LoGiudice, Cathryn Josif, Roslyn Malay, Zoë Hyde, Melissa Haswell, Melissa Lindeman, David Atkinson, Dawn Bessarab, Leon Flicker, Kate Smith

    This study looked into carers of older Aboriginal and Torres Strait Islanders in remote Western Australia and the empowerment, burden, and depression that they may experience.

    Aboriginal and Torres Strait Islander Remote work Carer wellbeing Qualitative data Quantitative data
    View
  • Service systems, Mental health services

    Impact of the Minds Together program for family and friends supporting someone with their mental health

    Elloyse Fitzgeraldson, Penny Reeves, Frances Kay-Lambkin, Xenia Dolja-Gore, Finn Hamilton, Sally Fitzpatrick , Everymind

    In 2018, Everymind implemented the Minds Together support programs specifically for family and friends of a person with depressive or anxiety symptoms.

    Mental health Research Support services Quantitative data Qualitative data
    View
  • Recognition and inclusion, Carer recognition

    8.11.2023

    A mixed method study exploring gender differences in dementia caregiving

    Vincent Poisson, Roslyn Poulos, Adrienne Withall, Ann Reilly, Leanne Emerson, Claire O'Connor

    This study investigated the gendered differences in dementia caregiving.

    Gender Dementia Support services Quantitative data Qualitative descriptive study
    View
  • Income and paid work, Support at work

    28.3.2024

    Work and Care Data Profile

    Fair Work Commission

    This report highlights the latest data obtained from ABS and the Household, Income and Labour Dynamics in Australia (HILDA) survey to map out a profile of work and care among employees in Australia.

    Flexible work Workforce participation Quantitative data Report
    View
  • Caring and society, Carer statistics

    4.7.2024

    Disability, Ageing and Carers, Australia

    Australian Bureau of Statistics

    Quantitative data Survey Carers Summary report
    View
  • Recognition and inclusion, Inclusion in decision making

    1.12.2022

    Rising Together

    Rising Together Action Group

    The Rising Together study sought to investigate the experiences of family/carer lived experience (LE) workers within the Victorian mental health system.

    Mental health carers Peer support Policy Qualitative data Quantitative data
    View
  • Service systems, Mental health services

    1.1.2024

    Mental Health Carers’ Support Experiences in Australia

    Elloyse Fitzgeraldson, José Cuenca, Sally Fitzpatrick , Minds Together

    This mixed-method study aimed to explore the support needs of carers of a person with depressive or anxiety symptoms, living in Australia.

    Mental health carers Mental health services Wellbeing Quantitative data Qualitative data
    View
  • Income and paid work, Support at work

    1.7.2021

    Understanding our workforce

    Australian Public Service Commission

    This study shows that four in ten employees in Australia reported having caring responsibilities, most commonly for children between the ages of 5 and 16, however 24% care for a parent and 7% for a partner. There are minimal differences in the proportions of carers and non-carers across each state.

    Carer-inclusive workplaces Mental health Carer wellbeing Quantitative data
    View
  • Developing skills and knowledge, Caring skills

    12.9.2024

    Development and Psychometric Evaluation of the Self-Care of Informal Caregivers Inventory

    International Journal of Nursing Studies Advances

    This study aimed to develop and validate a theory-based instrument, the Self-Care of Informal Caregivers Inventory, to measure self-care behaviors in three dimensions: maintenance, monitoring, and management.

    Carer wellbeing Carer needs Carer education Quantitative data
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.