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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

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Your search has returned 95 results

  • Service systems, Aged care services

    1.7.2021

    National elder abuse prevalence study

    Lixia Qu, Rae Kaspiew, Rachel Carson, John De Maio, Jacqui Harvey, Briony Horsfall

    This report provides a summary of the results from the Survey of Older People (SOP) and the Survey of General Community (SGC).

    Elder abuse Carers National Elder Abuse Prevalence Study Report
    View
  • Specific groups of carers, Young carers

    1.8.2017

    Young carers

    Diana Warren, Ben Edwards

    This report provides valuable details about the lived experiences of young carers in Australia.

    Young carers Children and young people Carer recognition Open access Report Longitudinal
    View
  • Caring and society, Caring during the COVID-19 pandemic

    1.3.2022

    Overview of findings from the Victorian COVID-19 carer survey

    Carers Victoria Knowledge Centre

    Victorian COVID-19 carer survey data shows that carers have suffered serious consequences during the pandemic including poor mental health and wellbeing, social isolation, and loss of respite from their caring role.

    Carer wellbeing Pandemic COVID-19 10 minute read Summary report
    View
  • Income and paid work, Support at work

    4.2.2022

    Micro-jobs for carers

    Urbis

    This summary reports on a research project conducted with Victorian carers about how to support flexible, lower-hour jobs for carers who are unable to work full time in paid employment.

    Recruitment Employment Flexible work Report
    View
  • Income and paid work, Support at work

    15.7.2022

    Carer leave

    Australian Government Productivity Commission

    This issues paper was released as part of an inquiry into the adequacy of carer leave in Australia, conducted by the Productivity Commission on the recommendation of the Royal Commission into Aged Care Quality and Safety.

    Carers leave Work and care Carer-inclusive workplaces Flexible work Report
    View
  • Caring and society, Caring during the COVID-19 pandemic

    1.6.2021

    NSW carer support needs

    The University of Sydney Research Centre for Children & Families

    This report reviews the support needs of carers, including Aboriginal Kinship carers in the context of the COVID-19 pandemic.

    COVID-19 Aboriginal and Torres Strait Islander Carer support Report
    View
  • Developing skills and knowledge, Communication skills

    15.12.2022

    Half the story

    Dementia Australia

    This resource provides useful information, tips, and strategies for those that want to consult in a meaningful way with people living with dementia.

    Dementia Participatory research Lived experience Report
    View
  • Caring and society, Caring during the COVID-19 pandemic

    1.6.2022

    The impact of COVID-19 on carers

    International Alliance of Carer Organizations

    This report looks at how the unprecedented healthcare crisis brought on by COVID-19 has also forced carers to adjust to the rapidly changing situation.

    COVID-19 Carer stress Carer wellbeing Report
    View
  • Caring and society, Caring during the COVID-19 pandemic

    23.5.2023

    Care in context

    Laura Davy, Ariadne Vromen , Australian National University

    This report provides insight into Australian experiences of caring during COVID-19, including what supports are required for carers to be able to engage in their caring role whilst also participating in paid work.

    COVID-19 Pandemic Social isolation Report Survey
    View
  • Carer health and wellbeing, Wellbeing programs

    6.7.2023

    Prioritising carers’ health and wellbeing in the healthcare system

    Natalie Winter, Rebecca Haddock

    This brief discusses how carers' physical, mental, social, and financial status can be impacted by their caring role. Yet, limited support in the community is resulting in poor health and wellbeing outcomes for carers.

    Mental health Physical health Financial wellbeing Report
    View
  • Planning and transitions, Transitions in care arrangements

    1.1.2023

    When caring ends: understanding and supporting informal care trajectories

    Emma Kirby, Christy E. Newman, Brendan Churchill, Louisa Smith, Iva Strnadova

    This report, part of a broader research program by the UNSW Centre for Social Research in Health aims to look at how, why, when, and for whom caring ends.

    Caring Carer identity Workforce participation Report
    View
  • Service systems, Disability services

    1.2.2023

    Disability and access to the NDIS in rural Australia

    National Rural Health Alliance

    This factsheet highlights how people with disability living in rural, regional and remote Australia experience challenges in accessing the support they need, with fewer providers and less workers available to deliver care.

    NDIS Rural and regional Access to care Report
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.