Carers Knowledge Exchange
Search
Close
Important information
Log In Subscribe for updates
  • Home
  • About
  • Research Library
  • Get Involved
  • Support for carers
  • My Research
  • Carer Hub
  • Home
  • About
  • Research Library
  • Get Involved
  • Support for carers
  • My Research
  • Carer Hub
Log In Subscribe for updates

<< Back to Results

  • Search

When caring ends: understanding and supporting informal care trajectories

Published Date: 1.1.2023

Go to Publication

Theme: Planning and transitions

Sub-theme: Transitions in care arrangements

Caring Carer identity Workforce participation

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Theme: Planning and transitions

Sub-theme: Transitions in care arrangements

Go to Publication Caring Carer identity Workforce participation

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

When caring ends: understanding and supporting informal care trajectories

Published Date: 1.1.2023

  • Author/ Authors

    Emma Kirby, Christy E. Newman, Brendan Churchill, Louisa Smith, Iva Strnadova

  • Suggested citation (APA 7th edition)

    Kirby, E., Newman, C.E., Churchill, B., Smith, L., & Strnadova, I. (2023). When caring ends: Understanding and supporting informal care trajectories. UNSW Centre for Social Research in Health.

Long Summary

This report, part of a broader research program by the UNSW Centre for Social Reserch in Health aims to look at how, why, when, and for whom caring ends. This research examines trajectories out of caring across a range of care relationships, life stages, and contexts. It aims to inform policy spaces allowing for improved provision of support, entitlements, carer planning, and carer recognition.

Author's / Publisher's Contact Details:

emma.kirby@unsw.edu.au

    Key Messages for Carers


  • It's okay if your trajectories out of caring are not linear, clear-cut, or straightforward
  • this is the case for many carers. Even when coming out of your role as a carer, this role can still involve ongoing commitments, duties, and an ongoing sense of carer identity.
  • Advice that carers gave to themselves was to be determined, resilient, optimistic, and flexible, which are traits that would help them even beyond their care ending.

  • Key Messages for Policy Makers


  • Policy, services, or entitlements are more focused on current carers, rather than those 'post-caregiving'. A considerable number of carers will experience burden and suffering through coming out of caring. The health and social impacts that are experienced by former carers are wide-ranging, including poor health, loneliness, limited employment opportunities, and financial precarity.
  • Carers generally do not feel well-supported when transitioning out of caring, with some feeling 'behind' in their careers, or facing fears about financial precarity whilst trying to secure paid employment.
  • Service support and activities which could be helpful include a helpline for carers needing help to plan, community mentoring, online resources for trajectories out of caring, workforce re-entry support, and a dedicated transition program.

Related Publications

  • The experience of sole mothers balancing paid work with care for a child with a disability

    Lindsay Cole , Angela Crettenden , Rachel Roberts , Annemarie Wright

    View
  • The carer persona

    Timothy Broady

    View
  • Carers’ experiences of end-of-life care

    Timothy Broady

    View
  • Availability and use of supportive practices for employees with a non-work informal caregiving role

    Hugh Bainbridge , Timothy Broady

    View

By the same Author

  • ‘Is There Anything Else You’d Like to Tell Us About Your Experience?’

    Giselle Newton , Emma Kirby , Lukas Hofstätter , Sarah Judd-Lam , Louisa Smith , Brendan Churchill , Iva Strnadova , Christy E. Newman

    View
  • (How) Will it end?

    Lukas Hofstaetter , Emma Kirby , Giselle Newton , Iva Strnadova , Christy E. Newman

    View
  • Hidden carers?

    Myra Hamilton , Jessica Botfield , Asha Persson , Christy E. Newman , Joanne Bryant , Kylie Valentine , Jack Wallace

    View
  • Caring during COVID-19

    Meredith Nash , Brendan Churchill

    View

There are 4 other results by the same Authors

View All
  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

    FAQs
  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

  • About
  • Subscribe for updates
  • Support for carers

  • Research Library
  • My Research
  • Submission guidelines

  • Contact us
  • Upcoming events
  • Frequently asked questions

Follow us on social media

  • Privacy Policy
  • Disclaimer
  • Terms & conditions
The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.