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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Research
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Your search has returned 30 results

  • Specific groups of carers, Aboriginal and Torres Strait Islander carers

    29.12.2020

    Still me, still deadly

    Neuroscience Research Australia

    The 'Caring for Spirit' project aims to provide a centralised online source of culturally relevant and accessible information about dementia for Aboriginal and Torres Strait Islander communities.

    Dementia Younger onset dementia Aboriginal and Torres Strait Islander Video 5 minute read
    View
  • Caring and society, Social value of caring

    20.12.2016

    Factors to consider for motor neurone disease carer intervention research

    Cathy Gluyas, Susan Mathers, Nicole Hennessy Anderson, Anna Ugalde

    This article provides insight into the experiences of those who care for someone with motor neuron disease.

    Motor Neurone Disease Carer burden Carer recognition Peer-reviewed journal article
    View
  • Caring and society, Caring during the COVID-19 pandemic

    1.6.2021

    NSW carer support needs

    The University of Sydney Research Centre for Children & Families

    This report reviews the support needs of carers, including Aboriginal Kinship carers in the context of the COVID-19 pandemic.

    COVID-19 Aboriginal and Torres Strait Islander Carer support
    View
  • Recognition and inclusion, Inclusion in decision making

    1.1.2018

    Tips for researchers involving unpaid carers in health and care research

    Learning for Involvement

    This resource provides information on improving carer involvement in research and sets out 'top tips' for improving carer involvement in research.

    Research Carer inclusion 5 minute read
    View
  • Developing skills and knowledge, Communication skills

    15.12.2022

    Half the story

    Dementia Australia

    This resource provides useful information, tips, and strategies for those that want to consult in a meaningful way with people living with dementia.

    Dementia Participatory research Lived experience
    View
  • Service systems, Aged care services

    29.4.2023

    Navigating community-based aged care services from the consumer perspective

    Yuchen Xie, Myra Hamilton, Carmelle Peisah , Kaarin J Anstey , Craig Sinclair , UNSW Ageing Futures Institute; School of Psychology, University of New South Wales; Neuroscience Research Australia; Discipline of Psychiatry, University of New South Wales; Specialty of Psychiatry, University of Sydney.

    This study investigated the experiences of older adults taking a more active role in navigating the aged care system.

    Social networks Aged care Informal carers Carer burden Support-seeking behaviour Support services
    View
  • Caring and society, Caring during the COVID-19 pandemic

    1.9.2022

    Review of remote and online learning experiences during COVID-19

    Andrew Wade, Anne Walstab, Esther Doecke, Melissa Tham , Australian Education Research Organisation

    This report explores the effectiveness of online learning methods used during the COVID-19 pandemic to support student outcomes. The report also explores the experiences of remote learning for Australian families of students with a disability.

    Mental health Mental health carers Children and young people Education Higher education Open access
    View
  • Recognition and inclusion, Carer recognition

    24.5.2022

    Communique: Carer Knowledge Exchange Research Incubator, 24-26 May 2022

    The Carer Knowledge Exchange Research Incubator communique provides a summary of this three-day event that took place over 24-26 May 2022.

    Communique Research Incubator Event
    View
  • Carer health and wellbeing, Wellbeing programs

    16.5.2023

    Communique: Carer Knowledge Exchange Research Incubator, 16-18 May 2023

    The Carer Knowledge Exchange Research Incubator communique provides a summary of this three-day event that took place over 16-18 May 2023.

    Carer wellbeing Communique Research Incubator Event
    View
  • Recognition and inclusion, Inclusion in decision making

    5.3.2024

    Translating policy into practice by engaging older persons and their carers as co-researchers

    Hannah Beks, Suzanne Clayden, Emma West, Olivia King, Laura Alston, Sue Williams, Alesha Sayner, Catherine Huggins, Kevin McNamara, Ellen Gaffy , Deeble Institute for Health Policy Research

    This briefing calls for the greater involvement of older persons and their carers in participatory health research as 'co-researchers' to develop better solutions.

    Participatory research Policy Research Older people
    View
  • Service systems, Disability services

    1.2.2024

    Joint Standing Committee on the National Disability Insurance Scheme

    Commonwealth of Australia

    This General Issues report covers the implementation, performance, governance, administration and expenditure of the NDIS. Three key principles relating to the NDIS highlighted in the report were: choice and control; co-design; and sustainability.

    NDIS Participatory research Care sector
    View
  • Service systems, Mental health services

    Impact of the Minds Together program for family and friends supporting someone with their mental health

    Elloyse Fitzgeraldson, Penny Reeves, Frances Kay-Lambkin, Xenia Dolja-Gore, Finn Hamilton, Sally Fitzpatrick , Everymind

    In 2018, Everymind implemented the Minds Together support programs specifically for family and friends of a person with depressive or anxiety symptoms.

    Mental health Research Support services
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.