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Factors to consider for motor neurone disease carer intervention research

A narrative literature review

Published Date: 20.12.2016

View Publication

Theme: Caring and society

Sub-theme: Social value of caring

Motor Neurone Disease Carer burden Carer recognition Peer-reviewed journal article Review

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Theme: Caring and society

Sub-theme: Social value of caring

View Publication Motor Neurone Disease Carer burden Carer recognition Peer-reviewed journal article Review

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Factors to consider for motor neurone disease carer intervention research

A narrative literature review

Published Date: 20.12.2016

  • Author/ Authors

    Cathy Gluyas, Susan Mathers, Nicole Hennessy Anderson, Anna Ugalde

  • Suggested citation (APA 7th edition)

    Gluyas, C., Mathers, S., Hennessy Anderson, N., & Ugalde, A. (2017). Factors to consider for motor neurone disease carer intervention research: A narrative literature review. Palliative & Supportive Care, 15(5), 600–608. https://doi.org/10.1017/S1478951516000912

Long Summary

This article provides insight into the experiences of those who care for someone with motor neuron disease and reveals various factors that are relevant when developing an intervention for a carer of someone with motor neuron disease.

    Key Messages for Carers


  • Recognises the unique challenges of caring for someone with motor neuron disease
  • Reveals that carers who care for someone with a more severe clinical profile experience poorer emotional health outcomes
  • Recognises the importance of social support for carers

  • Key Messages for Policy Makers


  • Reveals a range of recommendations for psychosocial interventions in the future
  • Analyses factors such as carer relationships and social support

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.