Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 40 results
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Impact of the Minds Together program for family and friends supporting someone with their mental health
Elloyse Fitzgeraldson, Penny Reeves, Frances Kay-Lambkin, Xenia Dolja-Gore, Finn Hamilton, Sally Fitzpatrick , Everymind
In 2018, Everymind implemented the Minds Together support programs specifically for family and friends of a person with depressive or anxiety symptoms.
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20.5.2024
Navigating multiple and complex systems of care and support with ageing family carers from multicultural backgrounds in Australia
Nichole Georgeou
This paper highlights the challenges faced by culturally and racially marginalised families face when seeking access to disability and aged care services and support.
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18.10.2024
The importance of recognition
Myra Hamilton, Hugh Bainbridge, Marian Baird, Nate Zettna, Lukas Hofstätter , Sarah Judd-Lam, Kate O’Loughlin
Carers frequently observe that their caring role is undervalued. This study provides new knowledge on the positive outcomes of carer recognition for carers’ social and emotional well-being and the sustainability of care relationships. Further, it provides evidence on how carer recognition mediates the relationship between adverse experiences of carers, and poor social and emotional outcomes. The findings suggest that reducing adverse experiences in employment, service navigation and social relationships are points of intervention for enhancing perceptions of recognition, and in turn, improving carer outcomes.
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13.2.2025
Caring for people with dementia
Ruth Brookman, Ruby Lipson-Smith, Olivia Maurice, Nina Mcllwain, Lukas Hofstaetter, Michelle DiGiacomo, Danielle Ni Chróinín, Madeleine J Cannings, Celia B Harris
This study explores the experiences of family care partners of people with dementia, highlighting their unmet needs and barriers to support within healthcare and aged care systems.
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24.3.2025
Structural stigma
Déborah Oliveira, Christine Musyimi , International Journal of care and caring
This article explores how deeply ingrained stigma in laws, policies, and systems creates unfair disadvantages for people caring for loved ones with dementia. It highlights that simply focusing on individual carers' wellbeing isn't enough.
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30.4.2025
Transportation: The Missing Link in Family Caregiver Support
National Aging and Disability Transportation Center, ARCH National Respite Network and Resource Center, ARCH National Respite Network and Resource Center
This resource provides information for caregiver support professionals about typical community transportation options and associated support services that could be used to support family caregivers in the US context.
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10.11.2021
The experiences of those affected by parental young onset dementia
Anna V Cartwright, Charlotte R Stoner, Richard D Pione, Aimee Spector , University College London (UCL), UK - Department of Clinical, Educational and Health Psychology
This article explores the unique challenges faced by individuals whose parents are diagnosed with Young Onset Dementia (YOD). The review highlights the profound emotional, social, and practical impacts on these individuals, including feelings of loss, changes in family dynamics, and increased caregiving responsibilities.
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1.5.2025
Barriers to and facilitators of integrated primary care engagement:
Chimereodo Okoroji , Lindsay Poole, Jesslyn Jamison, Donna Armentrout, Angela Pereyra Monero, Jennifer A Mautone, Ariel A. Williamson
This study explores how integrated primary care can enhance access to behavioral health services, reduce stigma, and promote early intervention.