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Time to Be Young?

A Qualitative Study Exploring the Impact of Attending a Course for Young Carers Who Have a Parent with Dementia

Published Date: 1.11.2024

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Theme: Specific groups of carers

Sub-theme: Young carers

Young carers Carer burden Dementia Information Support services International publication

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Theme: Specific groups of carers

Sub-theme: Young carers

View Publication Young carers Carer burden Dementia Information Support services International publication

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Time to Be Young?

A Qualitative Study Exploring the Impact of Attending a Course for Young Carers Who Have a Parent with Dementia

Published Date: 1.11.2024

  • Author/ Authors

    Celine Haaland-Johansen, Ingebjørg Haugen, Anne Marie Mork Rokstad

  • Suggested citation (APA 7th edition)

    Haaland-Johansen, C., Haugen, I., & Rokstad, A. M. (2025). “Time to Be Young?” – A Qualitative Study Exploring the Impact of Attending a Course for Young Carers Who Have a Parent with Dementia. Patient Related Outcome Measures, Volume 16, 1–8. https://doi.org/10.2147/prom.s499063

Long Summary

This Norwegian study explores the experiences of young carers of parents with dementia and evaluates the impact of the 'Time to be Young?' weekend course on their coping strategies. Using a qualitative descriptive approach with semi-structured interviews, researchers analysed the experiences of eight former participants.

    Key Messages for Carers


  • This article explores how connecting with others allows many young carers to share similar experiences, offering valuable support and understanding.
  • Learning more about dementia and available support services can help young carers to navigate challenges more effectively.
  • While caring for a parent with dementia is important, carers' wellbeing, education, and personal life matter too.

  • Key Messages for Policy Makers


  • Training for healthcare professionals is needed to identify, engage, and support young carers effectively.
  • Young carers need accessible, age-appropriate information about dementia and caregiving to improve their coping strategies.
  • Young carers face unique challenges that require targeted support within healthcare and social services.

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.