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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

    FAQs
  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

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Your search has returned 5 results

  • Specific groups of carers, Caring for someone at the end of life

    24.4.2023

    ‘The palliative care ambulance’

    Aileen Collier, Ann Dadich, Cathie Jeffs, Andrew Noble, Gregory B Crawford

    This article explored the lived experience of caregivers' interactions with paramedics during at home-based palliative care.

    Palliative care Peer-reviewed journal article Open access
    View
  • Carer health and wellbeing, Wellbeing programs

    1.11.2024

    Craftivism as inquiry: holding life's threads

    Chloe Watfern, Gaynor Macdonald, Michele Elliot, Lynne Stone, Imelda Gilmore, Manuel Tecson, Najla Turk, Penny Bingham, Jane Mears, Ann Dadich, Barbara Doran, Katherine Boydell, Sarah Wallace

    This article shares insights regarding an arts-based research project where carers of people with dementia conveyed their experiences in cloth.

    Carer identity Dementia Care relationship
    View
  • Developing skills and knowledge, Self-advocacy

    28.5.2024

    Strategies adopted by informal carers to enhance participation in daily activities for persons with dementia

    Gemma Burridge, Rosalind Bye, Carmen Amato, David Basic, Danielle Ni Chróinín, Susanna Hill, Kaitlin Howe, Karen P.Y.Liu

    This qualitative study aimed to explore the strategies carers use to assist individuals with dementia in completing daily activities.

    Mental health carers Carer stress Family caregivers Education
    View
  • Specific groups of carers, Caring for someone with dementia

    13.2.2025

    Caring for people with dementia

    Ruth Brookman, Ruby Lipson-Smith, Olivia Maurice, Nina Mcllwain, Lukas Hofstaetter, Michelle DiGiacomo, Danielle Ni Chróinín, Madeleine J Cannings, Celia B Harris

    This study explores the experiences of family care partners of people with dementia, highlighting their unmet needs and barriers to support within healthcare and aged care systems.

    Dementia Home care Support services
    View
  • Specific groups of carers, Caring for someone who is older

    20.1.2025

    Models of Care for Older People:

    Ann Dadich, Danielle Ni Chróinín, Angela Lan, Suhasini Shanmugarajan, Sarah Childs, Jennifer Alford

    This article brings together what is currently known about models of care for older people by reviewing relevant literature, outlining the types of models described, and analysing their reported outcomes and impacts.

    Older people Carer inclusion Rural and regional
    View

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.