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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

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Your search has returned 8 results

  • Caring and society, Social value of caring

    16.9.2024

    Producing the public caregiver

    Laura Megan Funk, Janna Klostermann, Holly Symonds-Brown, Katie Aubrecht, , International Journal of Care and Caring

    The article explores how Canadian organisations turn the care of family members into a political issue.

    Carer recognition Social policy Advocacy
    View
  • Carer health and wellbeing, Carer wellbeing measures

    31.1.2025

    Comparing the strain of male and female carers of cancer patients in Türkiye

    Nazli Ozbek, Ayse Kilic Ucar, Aygul Akyuz , International Journal of care and caring

    International publication Carer burden Carer wellbeing Türkiye
    View
  • Relationships and community, Social connection

    31.1.2025

    Unpaid Care Policies in the UK

    Heather Mulkey , International Journal of care and caring

    International publication Carer burden Social policy
    View
  • Specific groups of carers, Caring for someone with dementia

    11.10.2023

    Early-onset familial Alzheimer’s disease: do socio-demographic variables differentiate family caregivers on social support, self-efficacy and coping strategies?

    Maritza García-Toro, María Cruz Sánchez-Gómez, Ariana Castillo-Alzuguren , International Journal of care and caring

    Alzheimer’s Social networks Support groups
    View
  • Specific groups of carers, Young carers

    2.10.2024

    The challenge of identifying young carers in the US: how state laws put families at risk for separation

    Andrea Faith Kalvesmaki, Katherine E.M. Miller, Emma Armstrong-Carter, Feylyn Lewis, Regina A. Shih, Elizabeth Olson, Melinda S. Kavanaugh , International Journal of care and caring

    The article discusses the difficulties in identifying young carers in the US and how state laws can inadvertently put families at risk of separation.

    Young carers International publication USA Carer rights
    View
  • Income and paid work, Support at work

    6.3.2025

    Combining employment and care, and its health effects

    Charlotte Dötig, Reka Schweighoffer, Thomas Geisen Geisen, Karl Krajic , International Journal of care and caring

    This article explores the challenges faced by family carers in German-speaking countries balancing work and caring.

    International publication Carer support Carer wellbeing Mental health Work and care
    View
  • Specific groups of carers, Caring for someone with dementia

    24.3.2025

    Structural stigma

    Déborah Oliveira, Christine Musyimi , International Journal of care and caring

    This article explores how deeply ingrained stigma in laws, policies, and systems creates unfair disadvantages for people caring for loved ones with dementia. It highlights that simply focusing on individual carers' wellbeing isn't enough.

    Carer recognition Support services Stigma Policy Dementia International publication
    View
  • Specific groups of carers, Young carers

    21.11.2024

    Gaps in public support for young carers

    Mirjam Pot, Selma Kadi, Heidemarie Staflinger , International Journal of care and caring

    Policy International publication Young carers Carers Austria
    View

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.