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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

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Your search has returned 32 results

  • Specific groups of carers, Young carers

    1.1.2020

    Engaging with young carers: An overview

    Carers NSW

    This resource provides an overview of the young carer engagement toolkit which is intended to support more inclusive engagement of young carers in research.

    Young carers Research Hidden carers 5 minute read
    View
  • Specific groups of carers, Young carers

    1.1.2020

    Engaging with young carers: A checklist

    Carers NSW

    The engaging with young carers checklist provides a practical tool that assists those in the caring space to develop a plan for young carer engagement.

    Young carers Research Hidden carers 2 minute read
    View
  • Specific groups of carers, Young carers

    1.6.2020

    Young carers research project

    Carers NSW

    This research project aimed to establish evidence regarding how to better support the needs and experiences of young carers.

    Young carers Research Hidden carers Summary report Focus group Qualitative data
    View
  • Specific groups of carers, Culturally and linguistically diverse carers

    1.8.2018

    Focus groups with culturally and linguistically diverse carers in NSW

    Carers NSW

    This report reveals the findings of six focus groups which explored the experiences and needs of carers from CALD communities.

    CALD Focus group Participatory research Open access
    View
  • Caring and society, Carer statistics

    1.11.2012

    Carers NSW 2012 carer survey

    Carers NSW

    This report provides an overview of the 2012 Carer Survey conducted by Carers NSW.

    Carer wellbeing Respite Mental health services Survey Report
    View
  • Caring and society, Caring during the COVID-19 pandemic

    7.5.2020

    Coronavirus (COVID-19) and carers

    Carers NSW

    This position statement advocates for greater consideration and support for the health and wellbeing of carers during the COVID-19 crisis.

    COVID-19 Carer education Policy Flexible work 5 minute read Position paper
    View
  • Caring and society, Caring during the COVID-19 pandemic

    1.5.2020

    The COVID-19 pandemic

    Carers NSW

    This consultation report explores the impact of the COVID-19 pandemic on carers.

    COVID-19 Support services Lived experience Consultation Report
    View
  • Caring and society, Caring during the COVID-19 pandemic

    1.7.2020

    COVID-19 and carers

    Carers NSW

    The COVID-19 pandemic has resulted in social and economic challenges for carers including increased caring responsibilities and mental health stressors as well as reduced access to services and ability to partake in employment and education.

    COVID-19 Pandemic Carer wellbeing Literature review 10 minute read
    View
  • Caring and society, Carer statistics

    1.1.2022

    2022 National Carer Survey Factsheets

    Carers NSW

    This resource provides access to a series of fact sheets and briefings outlining the preliminary results from the 2022 Carer Survey.

    Survey Carer wellbeing Carer identity
    View
  • Specific groups of carers, Young carers

    17.8.2022

    YC Bytes

    Carers NSW

    This podcast explores the lived experience of young carers in NSW, featuring a range of guest speakers who share their insights about being a young carer.

    Podcast Young carers Lived experience
    View
  • Caring and society, Carer statistics

    16.10.2023

    2022 National Carer Survey

    Carers NSW

    Led by Carers NSW, the 2022 National Carer Survey has expanded the evidence base regarding carers' experiences and support needs. The survey asked carers across Australia about their caring roles, their experiences with services for themselves and the people they care for, their experiences with paid work, and their health and wellbeing.

    Survey Workforce participation Finances Carer recognition Carer support Carer wellbeing Report
    View
  • Service systems, Health care services

    11.9.2024

    Empowering carers when systems are complex

    Carers NSW, Carer Knowledge Exchange

    The CKE Interactive Webinar 8 focused on empowering carers in complex systems and improving service access. This paper summarises the themes discussed at the webinar by panellists and by participants in breakout rooms.

    Carer wellbeing Carer inclusion Mental health carers Policy
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.