Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 27 results
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1.1.2019
Family-focused care span
Michelle DiGiacomo, Slavica Kochovska, Phillipa Cahil, Claudia Virdun, Jane Phillips
This chapter introduces the concept of family-focussed palliative care and explains the different components of what patients and families perceive to be the most important aspects of end-of-life care.
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12.8.2018
Interacting with providers
Anna Green, Penelope Abbott, Patricia M. Davidson, Patricia Delaney, John Delaney, Patrick Patradoon-Ho, Michelle DiGiacomo
New research into Aboriginal carers’ experiences of accessing services and support for their child with a disability indicates a lack of cultural awareness and the presence of racism, with the authors arguing that a community-led approach can help counter intersectional oppression.
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29.11.2017
Experiences and needs of carers of Aboriginal children with a disability
Michelle DiGiacomo, Anna Green, Patricia Delaney, John Delaney, Patrick Patradoon-Ho, Penelope Abbott, Patricia M. Davidson
This article examines the double disadvantage that Aboriginal and Torres Strait Islander people with a disability experience, as well as the needs of their family members and carers.
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1.12.2016
Navigating the journey of Aboriginal childhood disability
Anna Green, Penelope Abbott, Patricia Delaney, Patrick Patradoon-Ho, John Delaney, Michelle DiGiacomo, Patricia M. Davidson
This study investigated the journey that carers of Aboriginal children with a disability go through when accessing services and support.
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17.4.2020
‘It’s quite a complex trail for families now’
Anna Green, Penelope Abbott, Tim Luckett, John Delaney, Patricia Delaney, Hasantha Gunasekera, Michelle DiGiacomo, Patricia M. Davidson
This article explores the many barriers to accessing services that families of Aboriginal and Torres Strait Islander children with a disability experience.
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10.12.2019
Collaborating across sectors to provide early intervention for Aboriginal and Torres Strait Islander children with disability and their families
Anna Green, Penelope Abbott, Tim Luckett, John Delaney, Patricia Delaney, Hasantha Gunasekera, Michelle DiGiacomo, Patricia M. Davidson
This study explores service providers perception of some of the factors that cause lack of coordination across services for families of Aboriginal children with disability.
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8.4.2013
Transitioning from caregiving to widowhood
Michelle DiGiacomo, Joanne M. Lewis, Marie T. Nolan, Jane Phillips, Patricia M. Davidson
This article examines the transition from caregiving to widowhood via the experiences of older women who take on caregiving roles for their husband at the end of life.
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10.1.2016
Family-centred approaches to healthcare interventions in chronic diseases in adults
Hiba Deek, Sandra Hamilton, Nicola Brown, Sally C. Inglis, Michelle DiGiacomo, Phillip J. Newton, Samar Noureddine, Peter S. MacDonald, Patricia M. Davidson
This article explores how family intervention can help improve health outcomes for people with chronic diseases.