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Caregiver characteristics and bereavement needs

Findings from a population study

Published Date: 8.8.2016

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Theme: Carer health and wellbeing

Sub-theme: Bereavement

Grief Former carers Spousal carers Terminal illness Peer-reviewed journal article Survey

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Theme: Carer health and wellbeing

Sub-theme: Bereavement

View Publication Grief Former carers Spousal carers Terminal illness Peer-reviewed journal article Survey

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Caregiver characteristics and bereavement needs

Findings from a population study

Published Date: 8.8.2016

  • Author/ Authors

    Michelle DiGiacomo, Yutaka Hatano, David C. Currow, Jane Phillips, Joanne M. Lewis, Amy P. Abernethy

  • Suggested citation (APA 7th edition)

    DiGiacomo, M., Hatano, Y., Phillips, J., Lewis, J., Abernethy, A. P., & Currow, D. C. (2016). Caregiver characteristics and bereavement needs: Findings from a population study. Palliative Medicine, 31(5), 465–474. https://doi.org/10.1177/0269216316663855

Long Summary

This article seeks to better understand the needs and experiences of carers who have lost someone from a terminal illness. Focusing specifically on bereavement, the study looks at the characteristics that impact how carers handle their grief. The findings indicated that spousal caregivers stood out as having different outcomes from other carers. This highlights an area that is not as often discussed; what happens after the caring role ends.

    Key Messages for Carers


  • Suggests that better support for carers of terminally ill patients is necessary, particularly as they express a need for better preparation
  • Provides an example of carers being involved in research and policy development
  • Advocates for the better health and wellbeing of carers

  • Key Messages for Policy Makers


  • Provides evidence regarding the needs of young spousal carers who have lost their partner
  • Provides an overview of demographic factors impacting outcomes for carers
  • Provides potential direction for further research

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.