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(How) Will it end?

A qualitative analysis of free-text survey data on informal care endings

Published Date: 3.12.2021

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Theme: Planning and transitions

Sub-theme: Changes in the caring role

Former carers Qualitative data Informal carers Peer-reviewed journal article Open access

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Theme: Planning and transitions

Sub-theme: Changes in the caring role

View Publication Former carers Qualitative data Informal carers Peer-reviewed journal article Open access

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

(How) Will it end?

A qualitative analysis of free-text survey data on informal care endings

Published Date: 3.12.2021

  • Author/ Authors

    Lukas Hofstaetter, Emma Kirby, Giselle Newton, Iva Strnadova, Christy E. Newman

  • Suggested citation (APA 7th edition)

    Kirby, E., Newton, G., Hofstätter, L., Judd-Lam, S., Strnadová, I., & Newman, C.E. (2021). (How) Will it end? A qualitative analysis of free-text survey data on informal care endings. International Journal of Care and Caring, 1-17. https://doi.org/10.1332/239788221X16357694113165

Long Summary

The health and social ‘after-effects’ of caring are well established, yet the way carers experience pathways out of caring remains under-researched. Using a qualitative approach, this article explores the lived experiences of current and former carers. Focusing on carers’ concerns, opportunities and preferences for care endings offers insights that can be used to develop more effective pathways out of caring.

    Key Messages for Carers


  • Provides carers insights on how to better navigate life after caring
  • Provides an example of carer’s lived experiences being used to influence policy making
  • Provides personalised insights of ‘sandwich carers’ and others with complex care arrangements

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.