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The Carer Knowledge Exchange is more than just a digital platform. It is also a large, diverse network of people with an interest in carers and in connecting research to practice. There are many ways you can get involved, including regular events and activities promoted to our mailing list and posted here.

Upcoming events

The Carer Knowledge Exchange team organises regular, free events for our networks to connect, share the latest evidence about carers and learn from each other. These include webinars, workshops and an annual Research Incubator event. 

 

New events are coming soon.

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Research Participation Opportunities

If you are a researcher looking to recruit carers to participate in a research project, please sign up to submit your call.

  • Until 31 December 2028

    Experiences of Caring for a Person Living with Psychosis and/or Bipolar Disorder

    Do you provide care to a person who has experienced psychosis and/or bipolar disorder?
    We would like to hear from you.

    Researchers at Monash University are seeking to understand what it is like to care for a person who has experienced psychosis and/or (hypo) manic episodes. This information will help us improve the way we can provide support.

    Participation in the study is voluntary and involves completing an online survey. The survey takes approximately 60 minutes to complete, but can be saved and completed over multiple sittings.

    To participate, use the link below.
    https://redcap.link/5xifi1uc

    For further information,
    email carestudy@monash.edu

  • Until 31 December 2027

    Improving health equity in dementia care

    Are you caring for someone living with dementia? We want to hear from you.
    This study aims to understand carers' experiences and needs to help improve dementia support services and guide the development of more culturally responsive and inclusive dementia care programs

    Who can take part?
    You can take part if you are a family member, friend, or other relative providing formal or informal care and support to a person living with dementia. We are especially interested in hearing from carers from diverse cultural and linguistic backgrounds.

    What is involved?
    A short, confidential online survey about your background, understanding of dementia, mental health and wellbeing, and use of support services.

  • Until 31 December 2027

    Experiences in accessing post-diagnostic care for people with young onset dementia

    Our research aims to explore and understand people's experience of accessing post-diagnostic support, including NDIS, following a diagnosis of young onset dementia. Young onset dementia is where symptoms start before the age of 65 years. We are eager to hear from people in the community and better understand the challenges they or their carers have faced in accessing NDIS, as well as what worked for them in the process. We hope that through this research we will identify gaps and find ways to improve post-diagnostic care for people with young onset dementia.

    Whats involved?
    * Online survey of ~25-30 mins
    * Questions about the dementia diagnosis, challenges, and experience accessing support services including NDIS

    Who can participate?
    * People with young onset dementia
    * Family members and carers
    * Formal support workers/service providers

Become a Carer Representative

Carer Representatives are specially trained volunteers who are part of the Carers NSW Carer Representation Program. These carers use their lived experience as family and friend carers to speak up for the needs of all carers in NSW.

Carers NSW Carer Representatives receive support to use and develop their skills in opportunities that interest them, such as:

•    participating in consultations and focus groups
•    providing feedback on services and resources
•    being a part of advisory groups and committees
•    sharing their story in publications and videos

Find out more

Recorded Events

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  • Share your ideas

    Do you have a suggestion for how we could improve the Carer Knowledge Exchange digital platform? Share your ideas via our Feedback Form.

    Feedback form

  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form.

    Add your research

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