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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Alzheimer’s
Clear all

Your search has returned 4 results

  • Specific groups of carers, Caring for someone with dementia

    9.4.2019

    Supporting people with young-onset dementia and their family carers better

    Lee-Fay Low

    This article utilises an extended case study to explore gaps in service provider support for those with young-onset dementia and their carers.

    Dementia Alzheimer’s Respite Open access Peer-reviewed journal article
    View
  • Service systems, Health care services

    20.4.2021

    Ask a neuroscientist

    Lezanne Ooi

    An easy to read four-part series on dementia, focusing on providing basic information about the condition and its progression from the perspective of a neuroscientist.

    Alzheimer’s Dementia 5 minute read
    View
  • Specific groups of carers, Caring for someone with dementia

    11.10.2023

    Early-onset familial Alzheimer’s disease: do socio-demographic variables differentiate family caregivers on social support, self-efficacy and coping strategies?

    Maritza García-Toro, María Cruz Sánchez-Gómez, Ariana Castillo-Alzuguren , International Journal of care and caring

    Alzheimer’s Social networks Support groups
    View
  • Relationships and community, Family relationships

    15.5.2025

    LGBTQ+ identity, social support and care access among LGBTQ+ caregivers of individuals living with mild cognitive impairment, Alzheimer’s disease, and related dementias

    ,

    This American study examines the associations of the caring role with lesbian, gay, bisexual, transgender, and queer (LGBTQ+) identity, social support, relationships, and care outcomes among LGBTQ+ older adults.

    Alzheimer’s Dementia LGBTQ+ USA
    View

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.