Carers Knowledge Exchange
Search
Close
Important information
Log In Subscribe for updates
  • Home
  • About
  • Research Library
  • Get Involved
  • Support for carers
  • My Research
  • Carer Hub
  • Home
  • About
  • Research Library
  • Get Involved
  • Support for carers
  • My Research
  • Carer Hub
Log In Subscribe for updates

Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

View all publications

Search for a resource

  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

    FAQs
  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

Your Results

Filter my Results

Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Carer identity
Clear all

Your search has returned 11 results

  • Recognition and inclusion, Carer recognition

    4.8.2015

    The carer persona

    Timothy Broady

    This article discusses the difficulties that arise surrounding the 'carer persona' identity which focuses primarily on the needs of their care recipients and often neglects the carers own needs.

    Carer identity Carer needs Carer intervention Carer rights
    View
  • Specific groups of carers, Caring for someone at the end of life

    12.11.2020

    Carers’ experiences of end-of-life care

    Timothy Broady

    This article explores various practical and emotional challenges that family and friend carers may face when the person that they care for is receiving end-of-life care.

    End of life care Carer identity Bereavement Family caregivers Open access Peer-reviewed journal article
    View
  • Recognition and inclusion, Carer recognition

    25.5.2011

    Role recognition and changes to self-identity in family caregivers of people with advanced cancer

    Anna Ugalde, Meinir Krishnasamy, Penelope Schofield

    This study reveals how carers of people with advanced cancer view the impact of caregiving and their role as a caregiver.

    Carer recognition Carer identity Cancer Peer-reviewed journal article
    View
  • Specific groups of carers, Caring for someone at the end of life

    12.11.2020

    Identity and the end-of-life story

    Rosemary Leonard, Debbie Horsfall, Kerrie Noonan, John Rosenberg

    This study considers the role of psychologists in the Caring at End‐of‐Life Research Program, which has identified the support required for people to die at home.

    End of life care Carer identity Mental health Peer-reviewed journal article
    View
  • Specific groups of carers, Young carers

    20.5.2022

    Use of parental disability trajectories to identify adolescents who are young carers

    Tania L. King, Marissa Shields, Martin O’Flaherty, Anne Kavanagh, Matthew J. Spittal

    This study revealed that parental disability may be an important way for service providers to better identify and subsequently support young carers.

    Young carers Disability Carer identity Open access Peer-reviewed journal article
    View
  • Caring and society, Carer statistics

    1.1.2022

    2022 National Carer Survey Factsheets

    Carers NSW

    This resource provides access to a series of fact sheets and briefings outlining the preliminary results from the 2022 Carer Survey.

    Survey Carer wellbeing Carer identity
    View
  • Planning and transitions, Transitions in care arrangements

    1.1.2023

    When caring ends: understanding and supporting informal care trajectories

    Emma Kirby, Christy E. Newman, Brendan Churchill, Louisa Smith, Iva Strnadova

    This report, part of a broader research program by the UNSW Centre for Social Research in Health aims to look at how, why, when, and for whom caring ends.

    Caring Carer identity Workforce participation
    View
  • Carer health and wellbeing, Wellbeing programs

    1.11.2024

    Craftivism as inquiry: holding life's threads

    Chloe Watfern, Gaynor Macdonald, Michele Elliot, Lynne Stone, Imelda Gilmore, Manuel Tecson, Najla Turk, Penny Bingham, Jane Mears, Ann Dadich, Barbara Doran, Katherine Boydell, Sarah Wallace

    This article shares insights regarding an arts-based research project where carers of people with dementia conveyed their experiences in cloth.

    Carer identity Dementia Care relationship
    View
  • Service systems, Health care services

    14.9.2023

    Characteristics and Health Service Use of a Longitudinal Cohort of Carers Aged over 45 in Central and Eastern Sydney, Australia

    Ben Harris-Roxas, Alamgir Kabir, Rachael Kearns, Gurdive Webster, Lisa Woodland, Margo Barr

    Health Longitudinal Physical health Carer identity
    View
  • Recognition and inclusion, Inclusion in decision making

    8.3.2011

    The Meaning of “Aging in Place” to Older People

    Janine L. Wiles, Annette Leibing, Nancy Guberman, Jeanne Reeve, Ruth E. S. Allen

    This study examines how older adults perceive the concept of “aging in place,” focusing on the functional, emotional, and symbolic meanings they associate with their homes, neighbourhoods, and communities.

    Ageing Carer identity Cultural safety New Zealand
    View
  • Specific groups of carers, Caring for someone living with a mental illness

    31.5.2025

    Navigating Crisis

    Katherine Boydell

    Rates of emergency department (ED) presentations for suicide crisis (thoughts, feelings, plans and behaviours) in adolescents are increasing. Parents play a key role in supporting adolescents during and after the ED presentation, however little is known about parental experiences in the ED. Interviews with 20 parents from across Australia were undertaken to help understand this experience.

    Mental health services Parents Carer identity Suicide
    View

  • About
  • Subscribe for updates
  • Support for carers

  • Research Library
  • My Research
  • Submission guidelines

  • Contact us
  • Upcoming events
  • Frequently asked questions

Follow us on social media

  • Privacy Policy
  • Disclaimer
  • Terms & conditions
The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.