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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Carer inclusion
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Your search has returned 38 results

  • Recognition and inclusion, Carer recognition

    1.6.2017

    Revising social inclusion to take account of care

    Trish Hill, Cathy Thomson

    This article explores the social exclusion that carers may face, suggesting that current social inclusion assessments often overlook care or perceive it as solely a barrier to inclusion.

    Carer recognition Social connectedness Social policy Carer inclusion Social justice Peer-reviewed journal article
    View
  • Income and paid work, Support at work

    1.4.2018

    Caring for society’s elders

    Hugh Bainbridge, Katrina Radford

    This book chapter uses excerpts of lived experiences to illustrate formal and informal eldercare.

    Carer inclusion Carer-inclusive workplaces Flexible work Book Open access
    View
  • Specific groups of carers, Young carers

    1.1.2020

    Engaging with young carers: A guide

    Carers NSW

    This engaging with young carers guide published by Carers NSW Australia aims to increase the involvement of young carers in research and consultation.

    Young carers Research Carer inclusion Hidden carers Guide
    View
  • Specific groups of carers, Caring for someone with dementia

    1.10.2020

    Carers of people living with dementia and discrimination

    Carers Australia, Dementia Australia

    This policy statement written jointly by Dementia Australia and Carers Australia, looks at the discrimination and isolation faced by people living with dementia and their carers in Australia.

    Dementia Discrimination Support services Social isolation Carer inclusion 5 minute read Position paper
    View
  • Income and paid work, Support at work

    20.9.2020

    Briefing 1: Working remotely can work for carers

    Sarah Judd-Lam, Rachel Matheson, Marian Baird, Myra Hamilton

    This briefing explores the unique opportunity provided by the Coronavirus pandemic for carers to access more flexible ways of working.

    Remote work Workplace entitlements COVID-19 Carer inclusion Flexible work 5 minute read
    View
  • Income and paid work, Support at work

    24.11.2020

    Briefing 2: Working remotely can work for carers but multi-dimensional flexibility will even better meet their needs

    Rachel Matheson, Priya Visvanathan, Sarah Judd-Lam, Paula Gleeson , University of Technology Sydney

    This briefing explores how employers can provide flexible work arrangements to support carers' participation in paid employment, advocating for employers to acknowledge the importance of accommodating carers needs.

    Working from home Workplace flexibility COVID-19 Carer inclusion Flexible work Remote work 5 minute read
    View
  • Income and paid work, Support at work

    8.3.2021

    Briefing 3: Flexible working is important, but employers need a broader workplace strategy for carers

    Keith Townsend, Hugh Bainbridge, Rachel Matheson, Sarah Judd-Lam

    This briefing provides insight into employment practices that that will help make balancing paid employment and caring more sustainable for carers.

    Carer inclusion Carer-inclusive workplaces COVID-19 Flexible work 5 minute read
    View
  • Income and paid work, Career development

    20.2.2021

    Inclusion in action

    Paula Gleeson, Leila Frijat, Tania Teague

    This toolbox acts as a research-based guide for employers who would like to create a Carer in Residence role in their organisation.

    Carer inclusion Flexible work Work and care Toolbox
    View
  • Specific groups of carers, Caring for someone at the end of life

    1.1.2014

    Families and the transition to specialist palliative care

    Emma Kirby, Alex Broom, Phillip Good, Julia Wootton, Jon Adams

    This article explores carers' experiences with medical specialists when negotiating the transition to end-of-life care.

    Palliative care End of life care Peer-reviewed journal article Carer inclusion
    View
  • Recognition and inclusion, Inclusion in decision making

    1.1.2018

    Tips for researchers involving unpaid carers in health and care research

    Learning for Involvement

    This resource provides information on improving carer involvement in research and sets out 'top tips' for improving carer involvement in research.

    Research Carer inclusion 5 minute read
    View
  • Developing skills and knowledge, Caring skills

    2.6.2023

    How well prepared are we for disaster?

    Tonia Crawford, Ivy Yen, Kuo-yi Jade Chang, Gwynnyth Llewellyn, Dale Dominey-Howes, Michelle Villeneuve

    During disasters, carers often have the responsibility of assisting the person they care for, as well as ensuring their own safety. This article explores the impact of disasters on carers of people with disability.

    Natural disasters Disability Peer-reviewed journal article Carer inclusion
    View
  • Planning and transitions, Planning for the future

    1.9.2023

    Disability Royal Commission Final Report: Our vision for an inclusive Australia Recommendations

    Commonwealth of Australia

    Carer inclusion Disability Disability services
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.