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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Decision-making
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Your search has returned 6 results

  • Recognition and inclusion, Carer recognition

    1.10.2020

    Supported decision-making in Victoria

    Office of Public Advocate, Victoria

    If you are an adult in Victoria with decision-making capacity, you can appoint another person as a supportive attorney to support you with decisions about your financial or personal matters. This means they will have legal authority to get information about you to help you make a decision. This also lets others know that you have chosen a particular person to support you and makes their role clear to everyone.

    Person-centred Caregiving End of life care Finances Dementia Elder abuse
    View
  • Developing skills and knowledge, Self-advocacy

    2.9.2023

    Equal right to decide

    Justine O’Neill, Anthony Mulholland, Len Robinson, Kerry Watson, Basak Batmaz, Nicole Meikle

    This paper focuses on the inclusion of people with intellectual disabilities in research and their perspectives on human rights and decision-making in the Australian context.

    Intellectual disability Carer education Decision-making Qualitative study
    View
  • Recognition and inclusion, Inclusion in decision making

    1.8.2023

    Supported decision-making

    Inclusion Australia

    This paper included consultations and engagement with people living with intellectual disability, their families and allies, and other stakeholders to inform the NDIS Review.

    NDIS Intellectual disability Decision-making Review Report
    View
  • Service systems, Aged care services

    23.2.2021

    What are the shared decision-making experiences of adult children in regard to their parent/s' health care in residential aged care facilities?

    Ainslie Monson, Joyce Hendricks, Deborah Sundin

    This paper looked at the shared decision-making (SDM) experiences of adult children in relation to their older parent's health care in residential aged care facilities (RACF).

    Decision-making Aged care Health care services
    View
  • Specific groups of carers, Culturally and linguistically diverse carers

    28.5.2024

    Patient Caregiver Perspectives on Accessing Language Interpretation in a Pediatric Emergency Department

    Emily A. Hartford, Nicholas Dimenstein, Barry Dwight , K. Casey Lion

    This article highlights the challenges faced by patients and caregivers who speak a language other than English (LOE) in pediatric emergency departments (ED).

    Carer rights Decision-making Health care CALD Cross-sectional study Survey
    View
  • Service systems, Disability services

    3.12.2024

    Facilitators, barriers, and strategies for supporting shared decision-making with people with intellectual disability:

    Kathryn Teale, Abigail Lewis, Rachel Skoss

    The study explores how primary healthcare professionals in Western Australia support shared decision-making with adults who have intellectual disabilities.

    Disability services Decision-making Support services Qualitative descriptive study
    View

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.