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What are the shared decision-making experiences of adult children in regard to their parent/s' health care in residential aged care facilities?

Published Date: 23.2.2021

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Theme: Service systems

Sub-theme: Aged care services

Decision-making Aged care Health care services

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


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Theme: Service systems

Sub-theme: Aged care services

View Publication Decision-making Aged care Health care services

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

What are the shared decision-making experiences of adult children in regard to their parent/s' health care in residential aged care facilities?

Published Date: 23.2.2021

  • Author/ Authors

    Ainslie Monson, Joyce Hendricks, Deborah Sundin

  • Suggested citation (APA 7th edition)

    Monson, A., Hendricks, J., & Sundin, D. (2021). What are the shared decision‐making experiences of adult children in regard to their parent/s’ health care in residential aged care facilities? International Journal of Older People Nursing, 16(4), e12375-n/a. https://doi.org/10.1111/opn.12375

Long Summary

This paper looked at the shared decision-making (SDM) experiences of adult children in relation to their older parent's health care in residential aged care facilities (RACF). Although SDM has been an important patient-centred approach since the 1990s, it is still not the reality in most aged care facilities many years on. As such, there is a need to understand what is important from a family member's point of view to optimise SDM and the care received. Staff and RACFs could also be assisted in developing strategies and training to encourage and implement this shared health decision-making.

    Key Messages for Carers


  • SDM looks like sharing information about healthcare options, as well as considering the older person's and their family's goals, values, and preferences to support the best healthcare decisions.
  • When SDM is practiced in a beneficial manner between the staff, older person, and their families, this results in a sense of satisfaction, clearer caring goals, and greater adherence to new treatments.
  • It is more beneficial when families want to be involved in the personal care of their parents, and participate in decision-making equally. However, some also struggle with feelings of guilt associated with their parents being at RACFs.

  • Key Messages for Policy Makers


  • Targeted education for the staff in RACFs will help establish constructive relationships with adult children and the initiation of SDM opportunities for adult children and their families
  • Staffing challenges (staff ratios, level of skills) may negatively affect family involvement, staff-family relationships, and communication, contributing to the family's inability to 'have a say'.
  • Educational interventions targeted towards RACF staff increase the family's likelihood or being involved in SDM.

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.