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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Grief
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Your search has returned 4 results

  • Specific groups of carers, Caring for someone at the end of life

    8.4.2013

    Transitioning from caregiving to widowhood

    Michelle DiGiacomo, Joanne M. Lewis, Marie T. Nolan, Jane Phillips, Patricia M. Davidson

    This article examines the transition from caregiving to widowhood via the experiences of older women who take on caregiving roles for their husband at the end of life.

    Widowhood Bereavement Qualitative data Grief Carer wellbeing Open access Peer-reviewed journal article
    View
  • Carer health and wellbeing, Bereavement

    8.8.2016

    Caregiver characteristics and bereavement needs

    Michelle DiGiacomo, Yutaka Hatano, David C. Currow, Jane Phillips, Joanne M. Lewis, Amy P. Abernethy

    This article seeks to better understand the needs and experiences of carers who have lost someone from a terminal illness.

    Grief Former carers Spousal carers Terminal illness Peer-reviewed journal article
    View
  • Relationships and community, Family relationships

    1.10.2016

    Anticipatory grief

    Brianne L. Overton, R. Rocco Cottone

    This paper explores the use of a family systems approach when individuals are dealing with anticipatory grief in response to an expected loss.

    Grief Bereavement Family
    View
  • Planning and transitions, Planning for the future

    1.2.2025

    The Death Literacy Index:

    Kristine Van Dinther , Kerrie Noonan, Rosemary Leonard , Sara Javanparast

    This study emphasises the value of experiential knowledge among grieving carers, advocating for compassionate community networks where carers can share experiences and receive support, particularly after their loss.

    Palliative care Carer support Carer wellbeing Grief
    View

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.