Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 11 results
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5.3.2024
Translating policy into practice by engaging older persons and their carers as co-researchers
Hannah Beks, Suzanne Clayden, Emma West, Olivia King, Laura Alston, Sue Williams, Alesha Sayner, Catherine Huggins, Kevin McNamara, Ellen Gaffy , Deeble Institute for Health Policy Research
This briefing calls for the greater involvement of older persons and their carers in participatory health research as 'co-researchers' to develop better solutions.
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1.2.2024
Joint Standing Committee on the National Disability Insurance Scheme
Commonwealth of Australia
This General Issues report covers the implementation, performance, governance, administration and expenditure of the NDIS. Three key principles relating to the NDIS highlighted in the report were: choice and control; co-design; and sustainability.
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8.7.2024
Setting priorities for mental health family carer research and advocacy in Australia
Marianne Wyder,
This article reports on the recent priority agenda for mental health family carer research and advocacy developed by a new Australia-based network of stakeholders and researchers with lived and living experience of supporting someone experiencing mental distress.
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11.6.2024
How to support caregivers in general practice: development of the Caregiver Care Model
Anna Mygind, Sara Marie Hebsgaard Offersen, Mai-Britt Guldin, Kaj S. Christensen, Mette Kjærgaard Nielsen
The article discusses the development and pilot testing of the 'Caregiver Care Model', which aims to support caregivers in general practice by addressing emotional distress and grief.
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8.7.2024
Setting priorities for mental health family carer research and advocacy in Australia
Daniel Gor, , Family and Carer Research and Advocacy Network (FaCRAN
The article presents a strategic agenda developed by the Family and Carer Research and Advocacy Network (FaCRAN) in response to reforms following the Royal Commission into Victoria’s Mental Health System.
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15.8.2025
Nurturing Creativity whilst Caring:
Bryher Bowness, Samina Begum, Sarah Bicknell , Lana Samuels , Sudhir Shah , Stephanie Hess, Karen Martin, Debbie Bark , Claire Henderson, Vanessa Lawrence
This study explores how Recovery Colleges can better support family carers’ wellbeing through a participatory action research project.
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14.4.2023
“You Don’t Get That from Professionals”
Noemi Tari-Kereszte, Noelene Armstrong, James A. Smith, Himanshu Gupta , Sam Goding, Sal-Amanda Endemann
This paper introduces Circles of Support, a peer‑led recovery program co‑designed in Darwin for families and friends of people experiencing alcohol and other drug (AOD) use.