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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Thematic analysis
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Your search has returned 24 results

  • Specific groups of carers, Caring for a child who is sick or has a disability

    29.11.2017

    Experiences and needs of carers of Aboriginal children with a disability

    Michelle DiGiacomo, Anna Green, Patricia Delaney, John Delaney, Patrick Patradoon-Ho, Penelope Abbott, Patricia M. Davidson

    This article examines the double disadvantage that Aboriginal and Torres Strait Islander people with a disability experience, as well as the needs of their family members and carers.

    Aboriginal and Torres Strait Islander Support services Children with disabilities Open access Peer-reviewed journal article Thematic analysis Qualitative study
    View
  • Specific groups of carers, Young carers

    29.4.2019

    The emotional well-being of young people having a parent with younger onset dementia

    Karen Hutchinson, Chris Roberts, Susan Kurrle, Michele Daly

    This article focuses on the lived experiences of young people caring for a parent with younger onset dementia.

    Children and young people Young carers Lived experience Younger onset dementia Support services Carer wellbeing Peer-reviewed journal article Thematic analysis Qualitative study
    View
  • Specific groups of carers, Caring for someone with dementia

    15.8.2018

    Co-creation of a family-focused service model living with younger onset dementia

    Karen Hutchinson, Chris Roberts, Pamela Roach, Susan Kurrle

    This qualitative study looks at families living with younger onset dementia through semi-structured interviews.

    Younger onset dementia Family Peer-reviewed journal article Thematic analysis Qualitative data
    View
  • Developing skills and knowledge, Caring skills

    16.12.2010

    The caregiving role following percutaneous coronary intervention

    John Rolley, Janice Smith, Michelle DiGiacomo, Yenna Salamonson, Patricia M. Davidson

    This article looks at the experiences of caregivers of individuals who have had percutaneous coronary intervention.

    Carer wellbeing Percutaneous coronary intervention Peer-reviewed journal article Thematic analysis Focus group
    View
  • Specific groups of carers, Caring for someone with cancer

    10.11.2021

    Experiences of female partners of prostate cancer survivors

    Anna Green, Natalie Winter, Michelle DiGiacomo, John L. Oliffe, Nicholas Ralph, Jeff Dunn, Suzanne K. Chambers

    This article focuses on the lived experiences of female partners of prostate cancer survivors, in which findings suggest that gender should be considered when providing support and resources to carers.

    Women Women's health Cancer Qualitative data Gender Open access Peer-reviewed journal article Thematic analysis Systematic review
    View
  • Service systems, Disability services

    8.11.2021

    Women’s experiences of accessing individualized disability supports

    Sophie Yates, Gemma Carey, Jen Hargrave, Eleanor Malbon, Celia Green

    This article explores how gender impacts accessibility to support services, in particular looking at the NDIS.

    NDIS Gender Disability services Gender inequality Open access Peer-reviewed journal article Qualitative study Thematic analysis
    View
  • Specific groups of carers, Culturally and linguistically diverse carers

    24.9.2020

    Wellbeing and experiences of Chinese and Vietnamese carers of people with mental illness in Australia

    Abner Weng Cheong Poon, Maria Cassaniti, Michele Sapucci, Rosaleen Ow

    This article explores the needs of CALD carers who are looking after someone with mental illness.

    Wellbeing Mental health Support groups Cultural safety Peer-reviewed journal article Qualitative study Quantitative data Thematic analysis
    View
  • Specific groups of carers, Culturally and linguistically diverse carers

    3.7.2020

    Well-being and needs of Malay carers of people with mental illness in Singapore

    Abner Weng Cheong Poon, Noraini Abdul Wahab, Radiah Salim, Rosaleen Ow

    This article assesses the needs of Malay carers for people with mental illness to identify areas of improvement for their health and wellbeing.

    Mental health Carer wellbeing CALD Peer-reviewed journal article Thematic analysis Qualitative study
    View
  • Service systems, Carer support services

    3.12.2019

    “A monster that lives in our lives”

    Nicole Hennessy Anderson, Cathy Gluyas, Susan Mathers, Peter Hudson, Anna Ugalde

    This study aimed to inform interventions for those who care for someone with motor neuron disease by gaining insight into the lived experience of these carers.

    Motor Neurone Disease Carer support Lived experience Peer-reviewed journal article Thematic analysis Qualitative study
    View
  • Specific groups of carers, Caring for someone at the end of life

    1.1.2018

    "It doesn't exist..."

    Emma Kirby, Zarnie Lwin , Katherine Kenny, Alex Broom, Holi Birman, Phillip Good

    This article explores a culturally and linguistically diverse carer perspective of the palliative care setting.

    Palliative care Peer-reviewed journal article Open access CALD Qualitative study Thematic analysis
    View
  • Specific groups of carers, Caring for a child who is sick or has a disability

    3.5.2013

    Carer and service providers' experiences of individual funding models for children with a disability in rural and remote areas

    Angela Dew, Kim Bulkeley, Craig Veitch, Anita Bundy, Michelle Lincoln, Jennie Brentnall, Gisselle Gallego, Scott Griffiths

    This article explores the experiences of carers and services providers with individual funding models for children with a disability living in rural and remote areas.

    Children and young people Disability services Rural and regional Peer-reviewed journal article Focus group Qualitative study Thematic analysis
    View
  • Planning and transitions, Making decisions

    27.5.2014

    Rural carers of people with disabilities

    Angela Dew, Vicki Happ, Kim Bulkeley, Anita Bundy, Michelle Lincoln, Gisselle Gallego, Jennie Brentnall, Craig Veitch

    This study explores a decision that rural carers often face: whether to move to a larger metropolitan centre to access support services or to remain living in a rural area.

    Rural and regional Disability Open access Peer-reviewed journal article Thematic analysis Focus group Qualitative study
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.