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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Work and care
Clear all

Your search has returned 11 results

  • Income and paid work, Support at work

    1.10.2021

    Modern work

    Black Dog Institute

    This paper brings together longitudinal data on Australian work and mental health.

    Mental health Work and care Report
    View
  • Carer health and wellbeing, Mental health

    2.1.2013

    I feel your pain

    Carol T. Kulik, Christina Cregan, Hugh Bainbridge

    This article explores the experiences of people with disabilities in the workplace, and the subsequent impact on both the care recipient’s and carer’s psychological wellbeing

    Mental health carers Work and care Peer-reviewed journal article
    View
  • Caring and society, Carer statistics

    1.10.2016

    Carers NSW 2016 carer survey

    Carers NSW

    The Carers NSW Carer Survey collects information about carers which is then used to guide the direction of the organisation and to facilitate systemic advocacy for carers.

    Survey Lived experience Work and care Carer wellbeing Report
    View
  • Income and paid work, Support at work

    15.7.2022

    Carer leave

    Australian Government Productivity Commission

    This issues paper was released as part of an inquiry into the adequacy of carer leave in Australia, conducted by the Productivity Commission on the recommendation of the Royal Commission into Aged Care Quality and Safety.

    Carers leave Work and care Carer-inclusive workplaces Flexible work
    View
  • Income and paid work, Career development

    20.2.2021

    Inclusion in action

    Paula Gleeson, Leila Frijat, Tania Teague

    This toolbox acts as a research-based guide for employers who would like to create a Carer in Residence role in their organisation.

    Carer inclusion Flexible work Work and care Toolbox
    View
  • Income and paid work, Support at work

    20.1.2022

    Looking beyond hours of care

    Andreea Constantin, Myra Hamilton, Nate Zettna, Marian Baird, Daniel Dinale, Lisa Gulesserian, Alison Williams

    This article explores the experiences of carers of a person with a disability when they withdraw from work, revealing that care strain can impact on all dimensions of paid employment.

    Workplace flexibility Carer-inclusive workplaces Work and care Open access
    View
  • Developing skills and knowledge, Online learning

    Child and Family Resilience Programs: Learning Modules

    Emily Small, Jo Bird, Margaret Sims, Nikki Jamieson

    Children and young people Work and care Mental health
    View
  • Income and paid work, Support at work

    1.3.2024

    Literature review for the Modern Awards Review 2023-24

    Meg Smith, Sara Charlesworth , Western Sydney University

    This literature review looks at research on modern awards and workplace relations and how this impacts on employees' work and care responsibilities.

    Work and care Gender inequality Employment
    View
  • Income and paid work, Support at work

    28.3.2024

    Work and Care Data Profile

    Fair Work Commission

    This report highlights the latest data obtained from ABS and the Household, Income and Labour Dynamics in Australia (HILDA) survey to map out a profile of work and care among employees in Australia.

    Flexible work Workforce participation Quantitative data
    View
  • Income and paid work, Support at work

    6.3.2025

    Combining employment and care, and its health effects

    Charlotte Dötig, Reka Schweighoffer, Thomas Geisen Geisen, Karl Krajic , International Journal of care and caring

    This article explores the challenges faced by family carers in German-speaking countries balancing work and caring.

    International publication Carer support Carer wellbeing Mental health Work and care
    View
  • Income and paid work, Support at work

    6.3.2025

    What Women Want

    Melissa Donelly , Community and Public Sector Union

    The What Women Want 2024/25 Survey by the Community and Public Sector Union (CPSU) aims to understand women's experiences, needs, and challenges in the workforce. Caring responsibilities were a significant factor in these challenges. Approximately 1 in 3 (32.1%) reported regular caring responsibilities, commonly for parents (58.3%), children under 18 (26.9%), adult children (23.9%), or others, including partners, relatives, friends, or neighbours. Over a third (36.2%) had dual caring roles, supporting both dependent children and others, and 70% of these women worked full-time.

    Women Flexible work Employment Workplace entitlements Working from home Gender inequality Workforce participation Work and care Carer-inclusive workplaces
    View

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.