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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Caregivers
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Your search has returned 49 results

  • Service systems, Carer support services

    4.8.2017

    Implementing a multi-modal support service model for the family caregivers of persons with age-related macular degeneration

    Bamini Gopinath, Ashley Craig, Annette Kifley, Gerald Liew, Jaye Bloffwitch, Kim Van Vu, Nichole Joachim, Robert Cummins, Julie Heraghty, Timothy Broady, Alison Hayes, Paul Mitchell

    This study investigated the experiences of individuals who care for persons with age-related macular degeneration and the need to provide tailored support to these carers.

    Age-related macular degeneration Family caregivers Support services Peer-reviewed journal article Open access
    View
  • Carer health and wellbeing, Mental health

    25.7.2012

    The experiences of Australian parents with psychosis

    Linda Campbell, Mary-Claire Hanlon, Abner Weng Cheong Poon, Stefania Paolini, Melanie Stone, Cherrie Galletly, Helen J Stain, Martin Cohen

    This article examines the experiences of Australian parents living with psychosis.

    Psychosis Parents Mental health Family caregivers Peer-reviewed journal article
    View
  • Specific groups of carers, Culturally and linguistically diverse carers

    21.8.2021

    A scoping review of Chinese families caring for a relative with mental illness

    Abner Weng Cheong Poon, Alyssa Cassidy

    This article reviews evidence of Chinese families caring for a relative with a mental illness.

    CALD Mental illness Scoping review Family caregivers Peer-reviewed journal article
    View
  • Specific groups of carers, Culturally and linguistically diverse carers

    2.4.2015

    A longitudinal study of the health and wellbeing of culturally and linguistically diverse caregivers of people with psychosis in Australia

    Abner Weng Cheong Poon, Carol Harvey, Lynette Joubert

    This article examines the experiences of CALD carers of people living with psychosis and the impact that role has on their life.

    CALD Psychosis Carer wellbeing Mental health Peer-reviewed journal article
    View
  • Specific groups of carers, Caring for someone with a neurological condition

    7.12.2020

    'Absent voices'

    Karen Hutchinson, Frances Rapport, Geoffrey Herkes, Andrew Bleasel, Armin Nikpour, Chong Wong, Carol Ireland, Lukas Hofstaetter, Sanjyot Vagholkar, Stephanie Kain, Tayhla Ryder, Jeffrey Braithwaite

    This article explores the experiences of those living with parental refractory epilepsy and their family members in order to address current evidence-gaps in research.

    Epilepsy Family caregivers Qualitative data Support services COVID-19 Conference
    View
  • Specific groups of carers, Caring for someone at the end of life

    28.10.2020

    Caring precariously

    Kristin Bindley, Joanne M. Lewis, Joanne Travaglia, Michelle DiGiacomo

    This article explores the experiences of carers who are navigating end-of-life care.

    Palliative care Social welfare Socioeconomic factors Qualitative data Family caregivers Open access Peer-reviewed journal article
    View
  • Carer health and wellbeing, Physical health

    28.11.2020

    Scoping review of family interventions that support the physical health of caregivers

    Abner Weng Cheong Poon, Julia Lappin, Alyssa Cassidy, Jan Breckenridge

    This article looks at the uses of family-based intervention in the context of the physical health of carers through the analysis of literature.

    Mental health Physical health Literature review Family interventions Peer-reviewed journal article
    View
  • Carer health and wellbeing, Mental health

    28.3.2022

    Caregiver burden and the associated factors in the family caregivers of patients with schizophrenia

    Leila Gholizadeh , Farnaz Rahmani, Fariborz Roshanghar, Elnaz Asghari

    This article analyses the experiences of families who care for a person with schizophrenia.

    Carer burden Carer wellbeing Family caregivers Peer-reviewed journal article
    View
  • Recognition and inclusion, Carer recognition

    25.5.2011

    Role recognition and changes to self-identity in family caregivers of people with advanced cancer

    Anna Ugalde, Meinir Krishnasamy, Penelope Schofield

    This study reveals how carers of people with advanced cancer view the impact of caregiving and their role as a caregiver.

    Carer recognition Carer identity Cancer Peer-reviewed journal article
    View
  • Carer health and wellbeing, Wellbeing programs

    13.12.2017

    A self-care, problem-solving and mindfulness intervention for informal caregivers of people with motor neurone disease

    Anna Ugalde, Susan Mathers, Cathy Gluyas

    This study investigated a therapeutic group intervention for people who care for those with motor neuron disease.

    Motor Neurone Disease Carer wellbeing Wellbeing Peer-reviewed journal article Support groups
    View
  • Specific groups of carers, Caring for someone with cancer

    3.9.2012

    Development of an instrument to measure self-efficacy in caregivers of people with advanced cancer

    Anna Ugalde, Meinir Krishnasamy, Penelope Schofield

    This study suggests a new instrument for assessing the experiences of caregivers who care for people with advanced cancer.

    Cancer Wellbeing Carer wellbeing Peer-reviewed journal article
    View
  • Carer health and wellbeing, Mental health

    1.11.2011

    Supporting informal caregivers of people with advanced cancer

    Anna Ugalde, Meinir Krishnasamy, Penelope Schofield

    This study explored how services can best support carers of people with advanced cancer.

    Cancer Carer support Carer support sector Peer-reviewed journal article
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.