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A self-care, problem-solving and mindfulness intervention for informal caregivers of people with motor neurone disease

A pilot study

Published Date: 13.12.2017

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Theme: Carer health and wellbeing

Sub-theme: Wellbeing programs

Motor Neurone Disease Carer wellbeing Wellbeing Peer-reviewed journal article Support groups Survey

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Theme: Carer health and wellbeing

Sub-theme: Wellbeing programs

View Publication Motor Neurone Disease Carer wellbeing Wellbeing Peer-reviewed journal article Support groups Survey

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

A self-care, problem-solving and mindfulness intervention for informal caregivers of people with motor neurone disease

A pilot study

Published Date: 13.12.2017

  • Author/ Authors

    Anna Ugalde, Susan Mathers, Cathy Gluyas

  • Suggested citation (APA 7th edition)

    Ugalde, A., Mathers, S., Hennessy Anderson, N., Hudson, P., Orellana, L., & Gluyas, C. (2018). A self-care, problem-solving and mindfulness intervention for informal caregivers of people with motor neurone disease: A pilot study. Palliative Medicine, 32(4), 726–732. https://doi.org/10.1177/0269216317743434

Long Summary

This study investigated a therapeutic group intervention for people who care for those with motor neuron disease. Results revealed that the intervention which focused on self-care, problem-solving and mindfulness, was both feasible and acceptable to carers.

    Key Messages for Carers


  • There is a lack of intervention programmes to support carers of those with motor neuron disease
  • Group formats are highly valued by this group of carers

  • Key Messages for Policy Makers


  • Carers in this study reported to have enjoyed the group format
  • This study provides a starting point for interventions for carers of those with motor neurone disease
  • It is hoped that studies such as these will help to create a sustainable intervention for this group of carers

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.