Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 21 results
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24.2.2025
Middle-Aged Adults' Perspectives on Caregiving for Their Siblings With Intellectual and Developmental Disabilities
Se Kwang Hwang, Kyung Mee Kim, Chung Eun Lee
This article examines the experiences of middle-aged adults in South Korea who care for siblings with intellectual and developmental disabilities. It highlights the influence of 'filial piety', a cultural value that encourages family-based caring.
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24.2.2025
Middle-Aged Adults' Perspectives on Caregiving for Their Siblings With Intellectual and Developmental Disabilities
Se Kwang Hwang, Kyung Mee Kim, Chung Eun Lee
This study looks at how middle-aged siblings in South Korea take on the role of caring for a brother or sister with intellectual or intellectual disabilities.
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18.11.2022
iSupport for Young Carers
Patricia Masterson-Algar, Kieren Egan, Greg Flynn, Gwenllian Hughes, Aimee Spector, Joshua Stott, Gill Windle
This paper highlights the creation of iSupport for Young Carers, an online training program designed to help young people caring for family members with dementia.
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5.2.2021
Intergenerational caring
Barbara D’Amen, Marco Socci, Sara Santini
The article explores the experiences of young people who care for older family members. It examines the types of tasks they take on, how caregiving affects their lives (both positively and negatively), and the ways they cope with these challenges.
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30.4.2025
Transportation: The Missing Link in Family Caregiver Support
National Aging and Disability Transportation Center, ARCH National Respite Network and Resource Center, ARCH National Respite Network and Resource Center
This resource provides information for caregiver support professionals about typical community transportation options and associated support services that could be used to support family caregivers in the US context.
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22.4.2025
Factors associated with experiencing informal caregiving as demanding and ability to work among working carers
Joana Vicente, Kevin J. McKee, Lennart Magnusson, Pauline Johansson, Björn Ekmane , Elizabeth Hanson
- This study highlights the growing importance of understanding working carers (WKCs), individuals who balance paid employment with informal caregiving, and emphasises how the demands of their caring role can reduce their ability to maintain employment.
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1.4.2025
Transportation
Jill Kagan , ARCH National Respite Network and Resource Center
This article offers guidance for professionals supporting caregivers, detailing common community transportation options and related services that can assist family caregivers. It highlights the critical role of transportation in enhancing the quality of life for care recipients and reducing caregiver burden
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24.1.2018
Differences in Caregiving Outcomes and Experiences by Sexual Orientation and Gender Identity
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This US study shows that, after controlling for demographic and caregiving characteristics, LGBT caregivers were significantly more likely to report financial strain and showed trends toward elevated levels of poor health and emotional stress.