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Middle-Aged Adults' Perspectives on Caregiving for Their Siblings With Intellectual and Developmental Disabilities

Published Date: 24.2.2025

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Theme: Specific groups of carers

Sub-theme: Caring for someone with disability

Disability Carer support Social welfare International publication Qualitative study Thematic analysis

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Theme: Specific groups of carers

Sub-theme: Caring for someone with disability

View Publication Disability Carer support Social welfare International publication Qualitative study Thematic analysis

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Middle-Aged Adults' Perspectives on Caregiving for Their Siblings With Intellectual and Developmental Disabilities

Published Date: 24.2.2025

  • Author/ Authors

    Se Kwang Hwang, Kyung Mee Kim, Chung Eun Lee

  • Suggested citation (APA 7th edition)

    Hwang, S. K., Kim, K. M., & Lee, C. E. (2025). Middle‐Aged adults’ perspectives on caregiving for their siblings with intellectual and developmental disabilities. Journal of Policy and Practice in Intellectual Disabilities, 22(1). https://doi.org/10.1111/jppi.70005

Long Summary

This article examines the experiences of middle-aged adults in South Korea who care for siblings with intellectual and developmental disabilities. It highlights the influence of 'filial piety', a cultural value that encourages family-based caring. Factors such as gender, birth order, and financial stability shape how these responsibilities are assumed, with older, male, and financially secure siblings more likely to take on caregiving roles. Despite policy advancements, caring remains a family obligation rooted in tradition. The authors advocate for individualised and culturally sensitive support to better assist sibling carers.

    Key Messages for Carers


  • Caring for a sibling with a disability is shaped by family traditions and societal expectations, but support is available.
  • Seeking tailored assistance and connecting with advocacy groups can help navigate caregiving challenges while ensuring personal wellbeing.

  • Key Messages for Policy Makers


  • Caring for siblings with disabilities in South Korea is deeply influenced by cultural expectations, particularly filial piety.
  • Policies should recognise these cultural dynamics and provide individualised, culturally sensitive support to ensure carers receive adequate financial, social, and emotional assistance.


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By the same Author

  • Middle-Aged Adults' Perspectives on Caregiving for Their Siblings With Intellectual and Developmental Disabilities

    Se Kwang Hwang , Kyung Mee Kim , Chung Eun Lee

    View

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.