Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 40 results
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Parent perspectives on School Can't: implications for health, welfare, disability and education
Louise Rogers, Tiffany Westphal
This report details the findings of a survey (conducted in December 2022 of 441 parents/carers who were supporting students who were experiencing school attendance difficulties.
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20.3.2024
Community-led policymaking charts a path through care crises
Sydney Policy Lab
Drawing from the Sydney Policy Lab's project 'Australia Cares', this article highlights how the recognition of diverse expertise and lived experience in policymaking is one step in addressing the crises in our care system.
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10.8.2020
Post-traumatic growth: Health professionals as mothers of adult children with schizophrenia
Debra Klages, Leah East, Kim Usher, Debra Jackson
This paper describes how mothers as carers of adult children with schizophrenia experienced a complex traumatic process influenced by gender and the dominant ruling relations in healthcare. health professionals can play a central role in supporting mothers/carers in the care of their adult children with schizophrenia.
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17.10.2024
Adapting a Preparatory Skills-Building Programme for Carers of People With Cancer Through Co-Design: The iCanSupport Project
Lukas Hofstätter ,
Existing programs often focus on mental health but overlook practical support for cancer carers. The iCanSupport project adapted existing programs using feedback from carers and healthcare professionals, making them more relevant to carers’ specific needs.
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18.4.2024
Beautiful but fragile
Kath Sellick, Agnes Girdwood, Bronwyn Robinson, Lisa Romanin, Jennifer Davidson, Lorna Downes
This study explored the experiences of family/carer Lived Experience (LE) workers in Victorian mental health services, focusing on how their personal caregiving experiences intersect with their roles and what is needed for sustainability.
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16.7.2025
More than just a token – a co-investigation of carer identity and role in the mental health lived and living experience workforce
Jacqueline Rozario, Alexandria Simpson, Tharindu Jayadeva, Liza Hopkins
This article explores the evolving role of carers within the Lived and Living Experience Workforce (LLEW) in mental health settings, highlighting how their identities remain under-recognised compared to consumer roles.