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Adapting a Preparatory Skills-Building Programme for Carers of People With Cancer Through Co-Design: The iCanSupport Project

Published Date: 17.10.2024

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Theme: Developing skills and knowledge

Sub-theme: Caring skills

Information Diversity Carer education Carer needs Lived experience Cancer

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Theme: Developing skills and knowledge

Sub-theme: Caring skills

Go to Publication Information Diversity Carer education Carer needs Lived experience Cancer

Verification Statement

This publication / resource is hosted on a publicly available external link. If the full text is not publicly accessible, summary points are included and a contact method for the author(s) is provided, where available.

The summary information presented is based on content submitted by an author or other user
, along with publicly available information about the publication / resource added by the Carer Knowledge Exchange team.

All content is reviewed, edited and approved by the Carer Knowledge Exchange team, in line with our Submission Guidelines.


To report an issue or request a change, please complete our Feedback Form.

 

Adapting a Preparatory Skills-Building Programme for Carers of People With Cancer Through Co-Design: The iCanSupport Project

Published Date: 17.10.2024

  • Author/ Authors

    Lukas Hofstätter ,

  • Suggested citation (APA 7th edition)

    Easpaig, B. N. G., Newman, B., Johnson, J., Sansom‐Daly, U. M., Jones, L., Hofstätter, L., Robertson, E. G., & Harrison, R. (2024). Adapting a preparatory Skills‐Building Programme for carers of people with Cancer through Co‐Design: the ICanSupport Project. Health Expectations, 27(5). https://doi.org/10.1111/hex.70061

Long Summary

Carers often feel unprepared for their roles, which can lead to significant distress. Existing programmes focus on mental health but lack practical support for carers of cancer patients. Through a co-design method and workshops, this study adapted existing carer support programs to ensure that the iCanSupport project was relevant and practical for carers. With the collaboration from carers and health professionals, this study identified 5 key themes: Creating value for carers, Multiple contributors to carer distress, the need flexible implementation, Diversity in carer journeys and Creating impact for carers. The analysis and adaptation of programs led to opportunities to link existing support programs with others to address gaps in current programmes available for carers, including in areas such as health system navigation and understanding health information, helping carers to feel better equipped and prepared to care for people with cancer in Australia.

    Key Messages for Carers


  • Provides a need for flexible programs resulting in better support and preparedness for carers
  • Provides case scenarios that foster connections among carers, encouraging them to share experiences and mutual support.

  • Key Messages for Policy Makers


  • Provides an overview of carers needing resources that better address both emotional and practical challenges
  • This study reinforce that the acknowledgement of lived experiences is fundamental for deep reflection and providing effective support to carers

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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.