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Adapting a Preparatory Skills-Building Programme for Carers of People With Cancer Through Co-Design: The iCanSupport Project

, Lukas Hofstätter

17.10.2024

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Summary

Carers often feel unprepared for their roles, which can lead to significant distress. Existing programmes focus on mental health but lack practical support for carers of cancer patients. Through a co-design method and workshops, this study adapted existing carer support programs to ensure that the iCanSupport project was relevant and practical for carers. With the collaboration from carers and health professionals, this study identified 5 key themes: Creating value for carers, Multiple contributors to carer distress, the need flexible implementation, Diversity in carer journeys and Creating impact for carers. The analysis and adaptation of programs led to opportunities to link existing support programs with others to address gaps in current programmes available for carers, including in areas such as health system navigation and understanding health information, helping carers to feel better equipped and prepared to care for people with cancer in Australia.

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