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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

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Your search has returned 76 results

  • Carer health and wellbeing, Mental health

    10.7.2009

    The subjective well-being of people caring for a family member with a severe disability at home

    Robert Cummins

    This journal article provides insight into the wellbeing of those caring for a relative with a severe disability.

    Home care Disability Wellbeing Peer-reviewed journal article Qualitative data Quantitative data Review
    View
  • Service systems, Health care services

    24.5.2006

    An exploratory study of GP awareness of carer emotional needs in Western Australia

    Caroline Bulsara, Noreen Fynn

    This article reports on an exploratory telephone survey conducted by Carers Western Australia to assess the awareness of carer needs and issues of general practitioners (GPs) in Western Australia and the way in which GPs perceive their role in providing information and support to carers.

    GPs Primary health care Emotional support Open access Peer-reviewed journal article Survey Quantitative data Qualitative data
    View
  • Carer health and wellbeing, Mental health

    21.12.2017

    Predictors of long‐term distress in female partners of men diagnosed with prostate cancer

    Melissa K. Hyde, Melissa Legg, Stefano Occhipinti, Stephen J. Lepore, Anna Ugalde, Leah Zajdlewicz, Kirstyn Laurie, Jeff Dunn, Suzanne K. Chambers

    This study investigated the long term stress experienced by female carers of a partner with prostate cancer.

    Longitudinal Mental illness Peer-reviewed journal article Cancer Carer burden Quantitative data
    View
  • Specific groups of carers, Caring for someone with cancer

    13.2.2019

    Identifying priorities for cancer caregiver interventions

    Sarah-May Blaschke, Sylvie Lambert, Patricia M. Livingston, Sanchia Aranda, Anna Boltong, Penelope Schofield, Suzanne K. Chambers, Meinir Krishnasamy, Anna Ugalde

    This study investigated the best ways in which caregivers for people with cancer can be supported.

    Cancer Carer intervention Carer wellbeing Open access Peer-reviewed journal article Quantitative data Qualitative data
    View
  • Specific groups of carers, Young carers

    1.10.2022

    Mental health of young informal carers

    Ludmila Fleitas Alfonzo, Ankur Singh, George Disney, Jennifer Ervin, Tania King

    This study aimed to investigate mental health outcomes of young carers, including depression, anxiety, and other mental or emotional concerns.

    Young carers Mental health Quantitative data Peer-reviewed journal article Open access Systematic review
    View
  • Specific groups of carers, Young carers

    20.5.2022

    Use of parental disability trajectories to identify adolescents who are young carers

    Tania L. King, Marissa Shields, Martin O’Flaherty, Anne Kavanagh, Matthew J. Spittal

    This study revealed that parental disability may be an important way for service providers to better identify and subsequently support young carers.

    Young carers Disability Carer identity Open access Peer-reviewed journal article Quantitative data
    View
  • Specific groups of carers, Young carers

    2.9.2021

    Examining the mental health effect of caring among adolescents using augmented inverse probability treatment weighting

    Tania King, Ankur Singh, George Disney

    This study investigated the mental health impacts of caring on young carers.

    Young carers Mental health Children and young people Peer-reviewed journal article Quantitative data
    View
  • Caring and society, Economic value of caring

    20.6.2023

    Informal caregiving provision for disabled or elderly in the families and work productivity

    Syed Afroz Keramat, Rubayyat Hashmi, Bolaji Samson Aregbeshola, Tracy Comans

    This article looks at the relationship between informal caregiving and productivity loss in Australia, and how informal caregivers' productivity at work is affected by their caregiving responsibilities.

    Informal carers Socioeconomic factors Longitudinal Quantitative data
    View
  • Specific groups of carers, Gender and sexuality diverse carers

    21.9.2023

    Disrupted Identities, Invisibility and Precarious Support

    Jane Ussher, Kimberley Allison, Samantha Ryan, Janette Perz , The Out with Cancer Study Team

    This study examined LGBTQI adolescents and young adults' (AYA) experiences of cancer and cancer care to understand existing health disparities.

    Cancer Health care services Quantitative data Qualitative data Survey Thematic analysis
    View
  • Service systems, Aged care services

    1.6.2021

    Carers of older Australians

    Jeromey Temple, Briony Dow, Leona Kosowicz

    This study finds that among carers of older Australians, a relatively high proportion (39%) cite unmet needs in their carer role, including a need for financial support, physical assistance, emotional support, improvement in carer health and more respite care.

    Ageing Aged care Carer support Carer wellbeing Finances Support services Quantitative data
    View
  • Service systems, Health care services

    18.12.2023

    Stakeholder perspectives on short-stay joint replacement programs

    Ilana Ackerman, Danielle Berkovic, Sze-Ee Soh, Justine Naylor, Peter Lewis, Richard de Steiger, Rachelle Buchbinder, Zanfina Ademi, Patrick Vallance, Ian Harris

    This study aimed to investigate the perspectives of stakeholder groups, including carers of people who had had a recent hip or knee replacement, on short-stay joint replacement programs.

    Health care services Disability Carer support Information Qualitative descriptive study Quantitative data
    View
  • Carer health and wellbeing, Wellbeing programs

    11.3.2024

    Evaluating a targeted support program for mental health carers

    Elloyse Fitzgeraldson, Sally Fitzpatrick, Joshua Dizon, Frances Kay-Lambkin

    This study researched the effects of having a targeted online support program, titled 'Minds Together' for carers of a person with mental health concerns.

    Carer intervention Support groups Mental health carers Support services Quantitative data
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.