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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Research
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Your search has returned 42 results

  • Income and paid work, Financial hardship

    1.5.2024

    A snapshot of inequality in Australia

    Productivity Commission

    This paper asses the state of economic inequality in Australia, exploring how the distribution of wealth and income have changed over COVID-19.

    Carer support Finances Economic modelling Research
    View
  • Service systems, Mental health services

    Impact of the Minds Together program for family and friends supporting someone with their mental health

    Elloyse Fitzgeraldson, Penny Reeves, Frances Kay-Lambkin, Xenia Dolja-Gore, Finn Hamilton, Sally Fitzpatrick , Everymind

    In 2018, Everymind implemented the Minds Together support programs specifically for family and friends of a person with depressive or anxiety symptoms.

    Mental health Research Support services Quantitative data Qualitative data
    View
  • Recognition and inclusion, Inclusion in decision making

    8.7.2024

    Setting priorities for mental health family carer research and advocacy in Australia

    Marianne Wyder,

    This article reports on the recent priority agenda for mental health family carer research and advocacy developed by a new Australia-based network of stakeholders and researchers with lived and living experience of supporting someone experiencing mental distress.

    Mental health carers Participatory research Policy Co-design Qualitative study
    View
  • Developing skills and knowledge, Self-advocacy

    6.12.2024

    ‘Is There Anything Else You’d Like to Tell Us About Your Experience?’

    Giselle Newton, Emma Kirby, Lukas Hofstätter , Sarah Judd-Lam, Louisa Smith, Brendan Churchill, Iva Strnadova, Christy E. Newman

    Open survey responses are a suitable tool for "sociological listening".

    Survey Methodology Carer inclusion Research
    View
  • Caring and society, Social value of caring

    16.9.2024

    Producing the public caregiver

    Laura Megan Funk, Janna Klostermann, Holly Symonds-Brown, Katie Aubrecht, , International Journal of Care and Caring

    The article explores how Canadian organisations turn the care of family members into a political issue.

    Carer recognition Social policy Advocacy Feminist research Qualitative data
    View
  • Specific groups of carers, Culturally and linguistically diverse carers

    2.10.2024

    A scoping review of barriers to accessing aged care services for older adults from culturally and linguistically diverse communities in Australia

    Anthony Obinna Iwuagwu, Abner Weng Cheong Poon, Elizabeth Fernandez

    The ageing population of culturally and linguistically diverse (CALD) individuals in Australia is growing due to the ageing of early migrants and increased family reunification. This scoping review examined research on barriers to aged care services for CALD older adults using the Access to Care Framework’s five dimensions: availability, accessibility, accommodation, affordability, and acceptability.

    CALD Carer inclusion Research Aged care Scoping review
    View
  • Carer health and wellbeing, Prevention and early intervention

    11.6.2024

    How to support caregivers in general practice: development of the Caregiver Care Model

    Anna Mygind, Sara Marie Hebsgaard Offersen, Mai-Britt Guldin, Kaj S. Christensen, Mette Kjærgaard Nielsen

    The article discusses the development and pilot testing of the 'Caregiver Care Model', which aims to support caregivers in general practice by addressing emotional distress and grief.

    Mental health Palliative care Carer wellbeing Participatory research Qualitative data
    View
  • Specific groups of carers, Aboriginal and Torres Strait Islander carers

    1.8.2023

    Stolenwealth: Examining the Expropriation of First Nations Women’s Unpaid Care

    Aboriginal and Torres Strait Islander Feminist research Discrimination Qualitative data
    View
  • Recognition and inclusion, Carer recognition

    2.1.2025

    Communique: Carer Knowledge Exchange Research Incubator, 28-30 May 2024

    Carer Knowledge Exchange

    The Carer Knowledge Exchange Research Incubator communique provides a summary of this three-day event that took place over six online sessions between 28 and 30 May 2024.

    Research Incubator Event Communique Policy Financial hardship Cultural Responsiveness
    View
  • Recognition and inclusion, Inclusion in decision making

    28.3.2025

    Insights for good practice

    Carers NSW

    This document summarises the key themes arising from the Carer Knowledge Exchange (CKE) interactive webinar, ‘Connecting carer research to practice through collaboration’, which took place on Thursday 28 November 2024.

    Lived experience Carer inclusion Participatory research
    View
  • Service systems, Carer support services

    27.5.2025

    Evaluating carer support interventions:

    Carer Knowledge Exchange

    This report consists of a summary of an international discussion panel hosted by the Carer Knowledge Exchange as part of the 2025 Research Incubator.

    Research Incubator Event Carer support Evaluation Report
    View
  • Specific groups of carers, Caring for someone with disability

    16.6.2025

    The Costs of Living With Disability in Australia

    Sophie Yates ,

    This article outlines the evidence gaps on poverty and disability in Australia, and explores some of the different methods used to understand the relevant issues both in Australia and internationally.

    Social policy Disability services Research Financial hardship Carer recognition Quantitative data
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.